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1.
Mem Cognit ; 52(2): 430-443, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-37792165

RESUMO

Through their selective rehearsal, Central Speakers can reshape collective memory in a group of listeners, both by increasing accessibility for mentioned items (shared practice effects) and by decreasing relative accessibility for related but unmentioned items (socially shared retrieval induced forgetting, i.e., SSRIF). Subsequent networked communication in the group can further modify these mnemonic influences. Extant empirical work has tended to examine such downstream influences on a Central Speaker's mnemonic influence following a relatively limited number of interactions - often only two or three conversations. We develop a set of Markov chain simulations to model the long-term dynamics of such conversational remembering across a variety of group types, based on reported empirical data. These models indicate that some previously reported effects will stabilize in the long-term collective memory following repeated rounds of conversation. Notably, both shared practice effects and SSRIF persist into future steady states. However, other projected future states differ from those described so far in the empirical literature, specifically: the amplification of shared practice effects in communicational versus solo remembering non-conversational groups, the relatively transient impact of social (dis)identification with a Central Speaker, and the sensitivity of communicating networks to much smaller mnemonic biases introduced by the Central Speaker than groups of individual rememberers. Together, these simulations contribute insights into the long-term temporal dynamics of collective memory by addressing questions difficult to tackle using extant laboratory methods, and provide concrete suggestions for future empirical work.


Assuntos
Memória , Comportamento Social , Humanos , Cadeias de Markov , Comunicação , Rememoração Mental
2.
Ann Sci ; : 1-32, 2024 Sep 25.
Artigo em Inglês | MEDLINE | ID: mdl-39318284

RESUMO

This paper utilizes the concept of the agency of material objects, proposed as a tenet by several historians of science in the late twentieth century. It argues that scientific instruments have agency in the field due to their value and fragility, both of which attributes served to dictate a social hierarchy of activity. Furthermore, the resulting numerical outputs served to discriminate between various groups. The principal focus is the role of instruments used by travellers sponsored by the Royal Geographical Society, London, but it also looks at the role of instruments on a larger triangulation; the project to survey the African part of the arc of the 30th meridian east of Greenwich. Seeing the instruments as material objects allows insights into the social arrangements and interactions taking place. It is argued that instruments, and the results of instrument use, entrenched existing power hierarchies, imparting greater prestige to those who were previously endowed with privilege. It is argued the instruments contributed to 'othering' both in the field and in the publications resulting from the expeditions.

3.
Aging Ment Health ; 27(6): 1198-1207, 2023 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-35622016

RESUMO

OBJECTIVE: The goal of this study was to examine if mental health and psychosocial well-being differed between middle-aged (MA; 40-59 years), younger-old (YO; 60-79 years), and older-old (OO; 80+ years) adults with respect to their trends, heterogeneity, and correlates. METHODS: Eighteen mental health and psychosocial well-being instruments were administered to 590 adults over age 40. Cross-sectional data also included self-report-based measures of sociodemographics, cognitive functioning, physical health and activity, and body mass index. RESULTS: Age trends across instruments varied in magnitude and shape, but generally supported an inverted U-shaped trend in mental health and psychosocial well-being, with small increases from MA to YO age (d = 0.29) and smaller declines from YO to OO age (d = -0.17). A U-shaped association between age and mental health heterogeneity was also observed. The strongest correlates of mental health and psychosocial well-being differed by age (MA: perceived stress; YO: successful aging; OO: compassion toward others), as did the associations of a flourishing versus languishing mental health and well-being profile. CONCLUSIONS: Our findings support the "paradox of aging," whereby declines in physical and cognitive health co-occur with relatively preserved mental health and well-being. Our findings indicate that variance in mental and psychosocial health does not increase linearly with age and support careful consideration of heterogeneity in mental health and aging research. Our findings also suggest that mental health and psychosocial well-being decouple from stress-related dimensions in MA and become increasingly associated with positive, other-oriented emotions in OO, broadly supporting socioemotional theories of aging.


Assuntos
Vida Independente , Saúde Mental , Humanos , Pessoa de Meia-Idade , Estudos Transversais , Envelhecimento/psicologia , Emoções
4.
Aging Ment Health ; 27(5): 948-956, 2023 05.
Artigo em Inglês | MEDLINE | ID: mdl-35486380

RESUMO

OBJECTIVES: Quality of life (QoL) is an important consideration for people living with HIV (PWH). We investigated the relationship between stress, psychological resources, and proactive behaviors, on QoL (conceptualized as life satisfaction, successful aging, and depressive symptoms) by testing the hypotheses: (1) greater life stress (stress and functional impairment) is associated with poorer QoL; (2) resources (mastery, resilience, and social support) are associated with better QoL, beyond the influence of stress; and (3) proactive behaviors (medication management and leisure activities) mediate the relationship between resources and QoL. METHODS: Secondary analyses were performed (N = 128 PWH). Participants' mean age was 52.3, 83.6% were male, and 53.9 identified as white. Multivariate regressions were performed within the context of path analyses. RESULTS: In series 1, greater stress was associated with poorer life satisfaction (p < 0.001), lower self-rated successful aging (p < 0.001), and greater depression (p < 0.001). Functional impairment was associated with lower successful aging (p = 0.017) and greater depression (p = 0.001). In series 2, which accounted for mastery, resilience, social support, as well as demographic covariates, mastery was associated with greater life satisfaction (p = 0.038). In series 3, stress, functional impairment, leisure activities, and ART management were added to the model and social support was associated with engagement in leisure activities (p < 0.001), which was associated with better successful aging (p = 0.006). Fit indices suggested adequate relative fit. In bootstrapped analyses of indirect effects, social support was indirectly associated with successful aging through leisure activities (p = 0.020). CONCLUSIONS: QoL, as captured by self-rated successful aging, is threatened by stress but positively influenced by social support and engaging in leisure activities. Findings support a model of proactive successful aging for PWH.


Assuntos
Infecções por HIV , Qualidade de Vida , Humanos , Masculino , Feminino , Qualidade de Vida/psicologia , Envelhecimento/psicologia , Estresse Psicológico/psicologia , Apoio Social , Infecções por HIV/psicologia
5.
Aging Ment Health ; 27(4): 729-735, 2023 04.
Artigo em Inglês | MEDLINE | ID: mdl-35486386

RESUMO

OBJECTIVES: It is examined whether older adults' cognitive ability in terms of delayed recall and verbal fluency is improving over time, whether this occurs over all educational levels and both sexes, and whether these changes are due to increasing proportions of individuals with higher education. METHODS: Analyses are based on the German samples of the Survey on Health, Ageing and Retirement in Europe (waves 2004 and 2013). RESULTS: Achievement levels increased over time and in all age groups. Improvements over educational levels occurred in parallel, differences between educational levels in the earlier survey were later reproduced at higher levels. Increasing proportions of individuals with higher education did not explain improvements of cognitive ability. No sex differences emerged. CONCLUSION: Improved cognitive abilities could not be explained by upward shifts of educational levels. Improvements in higher age groups may foster improved health status and prolonged self-determined life in the older population.


Assuntos
Envelhecimento , Transtornos Cognitivos , Masculino , Feminino , Humanos , Idoso , Envelhecimento/psicologia , Cognição , Aposentadoria , Transtornos Cognitivos/epidemiologia , Escolaridade , Instituições Acadêmicas
6.
Community Ment Health J ; 59(2): 294-305, 2023 02.
Artigo em Inglês | MEDLINE | ID: mdl-35976477

RESUMO

To study the prospective associations between social factors and recovery in patients with psychotic disorders in mental health specialist services. In this prospective observational cohort study, analyzes were based on baseline- and follow-up data after 18 months from 108 patients with psychosis. Personal recovery was assessed by the Questionnaire about the Process of Recovery (QPR). Linear regression models were used to test the prospective associations between social predictor variables and QPR. An association was found between experienced quality of interpersonal relationships at baseline and change in QPR score over the next 18 months. Stratified analyzes showed that the effect of experienced quality of interpersonal relationships on recovery was due to an association among persons living with others. Patients' experience of quality of interpersonal relationships are prospectively associated with recovery. In conclusion, findings indicate that interpersonal relationships and social interaction are central drivers of recovery in patients with psychotic disorders.


Assuntos
Serviços de Saúde Mental , Transtornos Psicóticos , Humanos , Fatores Sociais , Estudos Longitudinais , Transtornos Psicóticos/terapia , Transtornos Psicóticos/psicologia , Relações Interpessoais
7.
Public Health Nutr ; 25(2): 323-331, 2022 02.
Artigo em Inglês | MEDLINE | ID: mdl-34706788

RESUMO

OBJECTIVE: This study explored social and behavioural factors associated with a home fortification of complementary foods program among families of undernourished children in 14 rural communities in Honduras. DESIGN: We collected and analysed survey data from a convenience sample of 196 households participating in a nutritional program using home fortification of complementary foods in 2017. The program supplied families with a soy-based atole powder fortified with micronutrients. A research team completed a face-to-face survey exploring social and behavioural factors associated with nutritional supplement use. Anthropometric measurements for participating children were abstracted from health clinic records of previous quarterly appointments. SETTING: The study took place in San Jose del Negrito, Honduras. PARTICIPANTS: Participants were parents or guardians of children enrolled in the nutrition program. RESULTS: Nearly half of participant families shared the nutritional supplement with other family members besides the index child, while 10 % reported using the supplement as a meal replacement for the child. Low education level of mothers was associated with improper use of the supplement (P = 0·005). Poorer families were more likely to share the supplement (P = 0·013). CONCLUSIONS: These results highlight the challenges of programs using home fortification of complementary foods in the context of food scarcity. Findings highlight the importance of increasing rural children's overall caloric intake, perhaps by increasing access to locally available protein sources. Results also suggest transitioning nutritional programs to family-based interventions to increase overall intended compliance to nutrition programming.


Assuntos
Suplementos Nutricionais , Alimentos Fortificados , Criança , Honduras , Humanos , Lactente , Micronutrientes , Estado Nutricional
8.
J Med Ethics ; 48(8): 530-533, 2022 08.
Artigo em Inglês | MEDLINE | ID: mdl-34103367

RESUMO

One of the many problems posed by the collective effort to tackle COVID-19 is non-compliance with restrictions. Some people would like to obey restrictions but cannot due to their job or other life circumstances; others are not good at following rules that restrict their liberty, even if the potential consequences of doing so are repeatedly made very clear to them. Among this group are a minority who simply do not care about the consequences of their actions. But many others fail to accurately perceive the harms that they might be causing. One of the main reasons for this is that the harms done by transmitting COVID-19 to someone else are morally distant from the agent, particularly in cases where infection is asymptomatic. In this paper, I describe seven different aspects of moral distance in the context of COVID-19, explore how they affect (lack of) motivation to obey restrictions, and suggest several ways in which such moral distance can be reduced - primarily through enhanced-contact tracing that makes it clear to individuals and the public precisely who they could be harming and how.


Assuntos
COVID-19 , Consciência , Busca de Comunicante , Liberdade , Humanos , Princípios Morais
9.
Aging Ment Health ; 26(5): 958-970, 2022 05.
Artigo em Inglês | MEDLINE | ID: mdl-33463367

RESUMO

Objectives: Experiencing multi-sensory cognitive stimulation through the enjoyment of Cantonese opera songs, with their lively rhythms, familiar folk tales, meaningful lyrics and pleasant scenarios, has the potential to increase neuroplasticity and prevent cognitive decline.Methods: This prospective pre- and post-test quasi-experimental randomised controlled trial design study aimed to explore the social benefits of older adults' active participation in practising Cantonese opera songs as compared with passive participation (as an audience) and a non-interventional control group on cognitive function psychological function, functional independence, well-being and health.Results: By recruiting a group of older adults who were receiving day activities social service in Hong Kong. Thirty participants were randomly allocated to active participation in Cantonese opera (ACO). They participated in practising Cantonese opera songs. Thirty-four participants were assigned to passive participation in Cantonese opera (PCO). They received passive intervention by listening to and appreciating the opera songs as a social event. Thirty-one participants were used as a control group and received no similar training. (Results) ACO caused a positive change in cognitive function as compared to PCO and to no intervention, which implies that active learning and practise of opera songs benefits global cognitive function. The psychological function of the participants in the PCO group showed an elevated positive affect and a reduced negative affect. A statistically significant difference was noted in the time effect among the physical domains of health status, functional independence and well-being of participants who underwent Cantonese opera intervention.


Assuntos
Transtornos Cognitivos , Disfunção Cognitiva , Idoso , Cognição/fisiologia , Disfunção Cognitiva/terapia , Humanos , Vida Independente , Estudos Prospectivos
10.
Aging Ment Health ; 26(11): 2208-2213, 2022 11.
Artigo em Inglês | MEDLINE | ID: mdl-34861806

RESUMO

OBJECTIVES: The influence of childhood sexual abuse (CSA) may be seen immediately or across the life course. CSA is also associated with increased HIV-risk behavior, and greater likelihood of an HIV/STI diagnosis. The aim of this study was to explore the perspectives of CSA among older adults living with HIV. METHODS: Twenty-four adults living with HIV aged 50 to 67 years (mean age = 58.5 years), with a history of CSA, receiving care from an HIV clinic in South Carolina, participated in the study. In-depth semi-structured interviews were conducted, audio recorded and analyzed using a thematic analytic approach. The iterative analytic process included a three-step approach: discussion of initial thoughts and key concepts, identification and reconciliation of codes, and naming of emergent themes. RESULTS: Four themes emerged: Psychological issues due to CSA, relationship challenges due to CSA, self-blame, and reliving childhood trauma (subtheme: lack of influence of CSA today). Some participants reported feeling the influence of CSA several years after the event while others noted that that there was a lack of influence of CSA at present. CONCLUSIONS: Trauma-informed intervention programs are needed for older adults living with HIV who still experience the influence of their CSA experience. Future research should delve into the design and feasibility of implementing these programs.


Assuntos
Experiências Adversas da Infância , Abuso Sexual na Infância , Infecções por HIV , Infecções Sexualmente Transmissíveis , Humanos , Idoso , Criança , Infecções por HIV/psicologia , South Carolina , Comportamento Sexual
11.
Yale J Biol Med ; 95(1): 153-163, 2022 03.
Artigo em Inglês | MEDLINE | ID: mdl-35370485

RESUMO

Chronic back pain (CBP) is a common symptom throughout the world, and those undergoing it often experience a profound degradation of life. Despite extensive research, it remains an elusive symptom. In most cases, CBP is "non-specific," since bio-mechanisms examined in the clinic do not account for it; another way of saying this is that it is "of obscure origins." This paper re-directs attention towards origins that are distal and usually out of sight from the vantage point of the clinic. CBP as considered here is non-specific, persists ≥ 3 months, and, additionally, interferes with activities of daily life, such as family interaction or work. A theory proposed in the paper draws upon Durkheim's Suicide to explain why exposures in the distal social contexts of family and workplace are fundamentally implicated in CBP. The theory is formed out of previously published studies on family and workplace social contexts of CBP and, in effect, provides a theoretical framework with which to review them. After treatment of CBP in the clinic, patients return to family and workplace contexts. Unless exposures in these contexts are addressed, they serve as continually renewing sources of CBP that remain unabated regardless of mechanism-based treatment in the clinic.


Assuntos
Meio Social , Local de Trabalho , Dor nas Costas , Humanos
12.
J Med Ethics ; 2021 Jul 14.
Artigo em Inglês | MEDLINE | ID: mdl-34261802

RESUMO

Inadequate diet is the leading risk factor for morbidity and mortality worldwide. However, approaches to identifying inadequate diets in clinical practice remain inconsistent, and dietary interventions (on both individual and public health policy levels) frequently focus on facilitating 'healthy choices', with limited emphasis on structural constraints. We examine the ethical implications of introducing a routine question in the medical history about ability to access food. Not collecting data on food security means that clinicians are unable to identify people who may benefit from support on an individual level, unable to consider relevant dietary risk factors for disease and disease progression and unable to monitor population trends and inequalities in dietary access in order to design effective policy interventions. We argue that the current lack of routine screening for food insecurity is inconsistent with our approach to other health behaviours (eg, smoking and alcohol use), as well as with doctors' frequent informal role as gatekeepers to the food aid system, and recent calls for governmental action on food insecurity and health inequalities from individual clinicians and professional bodies. Potential ethical barriers to asking patients about food security are addressed, including concerns about stigma, limiting autonomy, fair resource allocation, unclear professional remits and clinicians' ability to offer effective interventions. We suggest that there is an ethical imperative for doctors to ask patients about their ability to access healthy food. Gathering this data provides a valuable first step in re-framing the social determinants of health as modifiable risks, rather than inevitable inequities.

13.
J Med Ethics ; 2021 Jul 06.
Artigo em Inglês | MEDLINE | ID: mdl-34230211

RESUMO

Research involving migrant youth involves navigating and negotiating complex challenges in order to uphold their rights and dignity, but also all while maintaining scientific rigour. COVID-19 has changed the global landscape within many domains and has increasingly highlighted inequities that exist. With restrictions focusing on maintaining physical distancing set in place to curb the spread of the virus, conducting in-person research becomes complicated. This article reflects on the ethical and methodological challenges encountered when conducting qualitative research during the pandemic with Syrian migrant youth who are resettled in Canada. The three areas discussed from the study are recruitment, informed consent and managing the interviews. Special attention to culture as being part of the study's methodology as an active reflexive process is also highlighted. The goal of this article is to contribute to the growing understanding of complexities of conducting research during COVID-19 with populations which have layered vulnerabilities, such as migrant youth. This article hopes that the reflections may help future researchers in conducting their research during this pandemic by being cognizant of both the ethical and methodological challenges discussed.

14.
Aging Ment Health ; 25(12): 2191-2199, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-33183066

RESUMO

OBJECTIVE: Personality traits have been linked to cognitive impairment, though work is needed to understand the mechanisms involved. Research also needs to consider alternative markers of cognitive impairment, such as informant report measures. The aim of the current study was to examine the role of health behaviors and social engagement as mediators for the relationship between personality and informant reported cognitive problems. It was expected that neuroticism would predict cognitive problems through negative health behaviors, while conscientiousness might predict cognitive problems through positive health behaviors. METHODS: Using data from the St. Louis Personality and Aging Network study at three time points, spanning approximately 2.27 years (N = 829, M age = 65.95), correlations were computed between the Big Five personality traits and health behaviors at wave 1, social engagement at wave 2, and informant reported cognitive problems at wave 3. Mediation tests examined whether health behaviors and social engagement explained the relationships found between personality and informant reported cognitive problems. RESULTS: Findings showed that neuroticism at wave 1 significantly predicted informant reported cognitive problems at wave 3 and that health behaviors, specifically wellness maintenance, partially explained this relationship. No significant associations were found between informant reported cognitive problems and conscientiousness, agreeableness, extraversion, openness, or social engagement. CONCLUSION: This study supports claims that neuroticism predicts later cognitive problems and expands on previous literature by demonstrating this relationship using an informant report measure. Furthermore, we found that health behaviors, and specifically wellness maintenance, account for some of the relationship between neuroticism and informant reported cognitive problems.


Assuntos
Extroversão Psicológica , Personalidade , Idoso , Cognição , Comportamentos Relacionados com a Saúde , Humanos , Neuroticismo
15.
Aging Ment Health ; 25(2): 206-212, 2021 02.
Artigo em Inglês | MEDLINE | ID: mdl-31771338

RESUMO

OBJECTIVE: To provide a new perspective on integrated biomedical and psychosocial dementia research. BACKGROUND: Dementia is being recognized as a multifactorial syndrome, but there is little interaction between biomedical and psychosocial approaches. A way to improve scientific knowledge is to seek better understanding of the mechanisms underlying the interaction between biomedical and psychosocial paradigms. One rationale for integrating biomedical and psychosocial research is the discordance between neuropathology and cognitive functioning. The concept of social health might bridge the two paradigms. It relates to how social resources influence the dynamic balance between capacities and limitations. HYPOTHESES: Social health can act as the driver for accessing cognitive reserve, in people with dementia through active facilitation and utilization of social and environmental resources. Thereby we link lifestyle social and opportunities to the brain reserve hypothesis. MANIFESTO: We provide a Manifesto on how to significantly move forward the dementia research agenda.


Assuntos
Reserva Cognitiva , Demência , Humanos
16.
Aging Ment Health ; 25(7): 1161-1164, 2021 07.
Artigo em Inglês | MEDLINE | ID: mdl-33491474

RESUMO

Responses to the COVID-19 pandemic in terms of physical distancing risk collateral damage such as increased loneliness. Older adults have been identified as being at higher risk of poor outcomes if infected and in many countries have been subjected to greater restrictions on physical contacts with others. Most research so far points towards an increase in loneliness during the pandemic. However, there has been a lack of prospective studies based on representative samples of older adults, with the oldest old, older adults with low or no Internet usage, and those in poor health currently underrepresented. Despite the significance of cultural norms for individuals' standards for social relations and, thus, the experience of loneliness, there has been a lack of comparative research on loneliness in older adults during the pandemic. Reviews have found little evidence for what interventions and what elements of interventions are effective in reducing loneliness. There is potential for social relations to be maintained via technology-based solutions, although there is a risk of excluding older adults with limited resources who are both least likely to use technology and most vulnerable to loneliness. Furthermore, remote social contacts cannot fully compensate for the loss of physical contacts. Where stay-at-home orders are not imposed, supporting neighbourliness and the community use of accessible open spaces are other options. Finally, policy responses to the pandemic need to be more nuanced and non-ageist in order to avoid unnecessary increases in loneliness in older adults.


Assuntos
COVID-19 , Pandemias , Idoso , Idoso de 80 Anos ou mais , Humanos , Solidão , Estudos Prospectivos , SARS-CoV-2 , Isolamento Social
17.
Afr J AIDS Res ; 20(1): 25-31, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33632078

RESUMO

Background: More than 60% of older adults living with HIV reside in sub-Saharan Africa. Namibia has one of the highest HIV/AIDS prevalence rates. This study examined the association between social support, spirituality and depressive symptoms.Method and results: The sample consisted of 147 Oshiwambo-speaking older adults (mean age = 61 years, SD = 6.92 years) with HIV in Namibia. By utilising a hierarchical multivariate regression method, this study found that social support from friends and spirituality showed a significant negative relationship to depressive symptoms. In addition, self-rated health status and alcohol use were significant sociodemographic predicitive factors of depressive symptoms.Conclusion: This study suggests the need to develop interventions and support programmes that incorporate peer support and spiritual practice to promote health and well-being among older persons living with HIV in Namibia.


Assuntos
Depressão/epidemiologia , Infecções por HIV/psicologia , Apoio Social , Espiritualidade , Idoso , Idoso de 80 Anos ou mais , Feminino , Infecções por HIV/epidemiologia , Nível de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Namíbia/epidemiologia , Prevalência
18.
Med Health Care Philos ; 24(4): 563-572, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34259964

RESUMO

Chronic pain patients often miss receiving acknowledgement for the multidimensional struggles they face with their specific conditions. People suffering from chronic pain experience a type of invisibility that is also borne by other chronically ill people and their respective medical conditions. However, chronic pain patients face both passive and active exclusion from social participation in activities like family interactions or workplace inclusion. Although such aspects are discussed in the debates lead by the bio-psycho-social model of pain, there seems to be a lack of a distinct interest in assessing more specifically the social aspects regarding chronic pain. As a result, the social aspects have yet to be taken into a more thorough theoretical consideration of chronic pain and to be practically implemented to help affected patients. By addressing chronic pain patients' struggle for recognition, this paper attempts to shed light on some of these social aspects. We base this attempt on a theoretical framework that combines patients' statements with an adaptation of Axel Honneth's social-philosophical work on recognition. Thus, this paper tries to make a suggestion on how the bio-psycho-social model of pain can live up to its name by helping to address more adequately some of the more neglected aspects in chronic pain patients' suffering than has been possible to date.


Assuntos
Dor Crônica , Doença Crônica , Humanos , Local de Trabalho
19.
Epilepsy Behav ; 105: 106951, 2020 04.
Artigo em Inglês | MEDLINE | ID: mdl-32086151

RESUMO

OBJECTIVE: The objective of this study was to educate the school staff for a correct management of epileptic seizures in order to increase the safety of young people at school and promoting the administration of rescue drugs and in order to improve care and reduce improper calls to the health emergency number. METHODS: This project started in January 2016, and it is still ongoing at the Department of Neuroscience of Bambino Gesù Children's Hospital in Rome, Italy. There has been a data cut-off evaluation in November 2018. Two-hour training meetings with the school staff have been organized. The major topics of the training activities were as follows: report what epilepsy is, how to manage students with epileptic seizures, and how to administer rescue medications. During the meetings, the following two questionnaires were administered: one pretest in order to collect personal information and information on awareness of epilepsy, willingness to administer rescue medications, and anxiety in facing a seizure; and one posttest in order to check the knowledge acquired after the training sessions. Statistical analysis was performed using R version 3.2.3 (R Foundation for Statistical Computing, http://www.R-project.org/). Demographics (sex and age) and teaching experience were summarized with descriptive statistics for each variable. Demographics, teaching experience, awareness of disability, and knowledge of epilepsy were correlated to the management of seizures occurring in the classroom before the course; results are reported as odds ratios [OR] and 95% confidence interval (95 CI). RESULTS: Nine hundred school staff members (95% school staff and 5% social workers) entered in the project between January 2016 and November 2018. Seven hundred and forty (82%) returned the questionnaires fulfilled, and not all of them were completely filled. Ninety-eight percent of school staff (676/691) were aware about epilepsy; however, only in 16% (110) the awareness of epilepsy came from medical staff, scientific brochures, or participation in conventions. Thirty-five percent of school staff (248/707) believed that epilepsy reduces learning abilities, and 58% (409/703) believed that children with epilepsy need school support. After the training, 68% of school staff (496/734) correctly filled in the questionnaire related to the management of acute seizures versus 8% of them (57/718) in the prequestionnaire. After the training, 89% of school staff (601/675) were ready to administer rescue medications versus 54% (384/712) before the training. The majority of participants reported that the level of anxiety related to the management of seizures after the training significantly reduced. CONCLUSIONS: Results of this project documented an increase in knowledge of epilepsy, a better knowledge on management of acute seizures in the school settings, a reduction in anxiety, and an increase in willingness to administer rescue medications. Further studies should be planned in order to document the changes in the real-world management of seizures, to evaluate if a reduction in hospital admittances might be reached, and to extend the project by assessing, through a questionnaire, the stigma and prejudices against the children affected by epilepsy by their classmates.


Assuntos
Gerenciamento Clínico , Conhecimentos, Atitudes e Prática em Saúde , Instituições Acadêmicas , Convulsões/terapia , Estudantes , Capacitação de Professores/métodos , Adolescente , Adulto , Idoso , Criança , Escolaridade , Feminino , Humanos , Itália/epidemiologia , Masculino , Pessoa de Meia-Idade , Professores Escolares/psicologia , Convulsões/epidemiologia , Convulsões/psicologia , Estigma Social , Estudantes/psicologia , Inquéritos e Questionários , Adulto Jovem
20.
J Med Ethics ; 2020 Oct 16.
Artigo em Inglês | MEDLINE | ID: mdl-33067315

RESUMO

Shortages of life-saving medical resources caused by COVID-19 have prompted hospitals, healthcare systems, and governmentsto develop crisis standards of care, including 'triage protocols' to potentially ration medical supplies during the public health emergency. At the same time, the pandemic has highlighted and exacerbated racial, ethnic, and socioeconomic health disparities that together constitute a form of structural racism. These disparities pose a critical ethical challenge in developing fair triage systems that will maximize lives saved without perpetuating systemic inequities. Here we review alternatives to 'utilitarian' triage, including first-come first-served, egalitarian, and prioritarian systems of allocating scarce medical resources. We assess the comparative advantages and disadvantages of these allocation schemes. Ultimately, we argue that while triage protocols should not exacerbate disparities, they are not an adequate mechanism for redressing systemic health inequities. Entrenched health disparities must be addressed through broader social change.

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