Trajectories of health-related quality of life in children of parents with mental health problems: results of the BELLA study.

PURPOSE: Children of parents with mental health problems (CPM) have an increased risk for impaired health-related quality of life (HRQoL). This study aims at investigating the age- and gender-specific course of HRQoL and at exploring predictors of HRQoL in CPM based on longitudinal data (baseline, 1-year and 2-year follow-up) of a German population-based sample. METHODS: Longitudinal data from the German BELLA study was analyzed (n = 1429; aged 11 to 17 years at baseline). The SCL-S-9 in combination with the cutoff for the General Severity Index (GSI) from the longer SCL-90-R served to identify CPM (n = 312). At first, we compared domain-specific HRQoL according to the KIDSCREEN-27 in CPM versus Non-CPM. Focusing on CPM, we used individual growth modeling to investigate the age and gender-specific course, and to explore effects of risk and (personal, familial and social) resource factors on self-reported HRQoL in CPM. RESULTS: Self-reported HRQoL was reduced in CPM compared to Non-CPM in all domains, but in social support & peers. However, a minimal important difference was only reached in girls for the domain autonomy & parent relation. Internalizing and externalizing mental health problems were associated with impaired HRQoL in CPM. Self-efficacy, social support and family climate were identified as significant resources, but parental mental health problems over time were not associated with any investigated domain of HRQoL in CPM. CONCLUSIONS: Adolescent female CPM may be especially at risk for reduced HRQoL. When developing support programs for CPM, self-efficacy, social support and family climate should be considered, HRQoL and mental health problems in CPM should be addressed.

Children's Self-Reports About Illness-Related Information and Family Communication When a Parent Has a Life-Threatening Illness.

Children's experiences of information and family communication when a parent has a life-threatening illness have been sparsely studied, though such information is important for the child's wellbeing. The aim of this study was to explore children's reports of illness-related information and family communication when living with a parent with a life-threatening illness. Forty-eight children, aged 7 to 19 years, were recruited from four specialized palliative home care units in Stockholm, Sweden. All but one child reported that someone had told them about the parent's life-threatening illness; however, two thirds wanted more information. A quarter of the teenagers reported that they had questions about the illness that they did not dare to ask. Half of the children, aged 8 to 12, reported that they felt partially or completely unable to talk about how they felt or show their feelings to someone in the family. Interventions are needed that promote greater family communication and family-professional communication.

Parental and children's report of emotional problems: agreement, explanatory factors and event-emotion correlation.

BACKGROUND: As often only parents are addressed, studying parent-child agreement and its explanatory factors is crucial in gaining accurate information on young children's emotional problems. METHOD: Parental and children's reports of children's emotional problems (anger, anxiety, sadness) and children's reports of life events were gathered between February and June, 2010 from 464 Belgian nonclinical children 5-10 years old. RESULTS: Children reported more emotional problems than their parents. Parental underestimation was higher in the case of girls, older children, nontraditional family structures and authoritative parenting style. Furthermore, life events and emotional problems were significantly correlated only when using children's reported emotions. CONCLUSIONS: In our nonclinical children, interviewing both parents and children on children's emotional problems is necessary and parent-child disagreement can partially be explained by child or family characteristics.

The Compatibility of Children with Obesity to Self-Report Aspects of Physical Activity Domains.

Questions about the different aspects of physical activity (PA) are commonly asked in the clinical setting, yet their compatibility for use with children, particularly children with obesity (OB) is uncertain. Our aim was to investigate different PA-related questions when compared to an objective maximal cardiopulmonary exercise test (CPET) or validated questionnaires. For this study, 33 normal-weight (NW) (5 to less than 85% BMI percentile) and 35 OB (≥95% BMI percentile) children responded to three self-report PA questions evaluating PA domains (exercise capacity, limitations, and the maintenance of an active lifestyle); they also completed a maximal CPET and two validated questionnaires: the New York Heart Association (NYHA) questionnaire and the international physical activity questionnaire (IPAQ). The results regarding the NW children were highly compatible with their self-reports about exercise capacity (85%), whereas the compatibility was low (40%) in the OB group (p < 0.001). Both OB and NW groups had moderate compatibility between the self-report and objective findings regarding their exercise limitations and lifestyle with no significant differences between the groups. These findings suggest that it is inadvisable to rely on a single-item question by which to assess PA in OB children, and no definite conclusions regarding PA status should be drawn. NW children are more compatible with self-reporting their overall exercise capacity, with more limited compatibilities observed when self-reporting their limitations or lifestyle.