Actions helping expressed or anticipated needs: Patients with advanced cancer and their family caregivers' experiences of specialist palliative home care teams.
Eur J Cancer Care (Engl)
; 27(6): e12948, 2018 Nov.
Article
en En
| MEDLINE
| ID: mdl-30298967
ABSTRACT
Patients with advanced cancer and family caregivers in palliative care face physical, psychological, social and existential challenges, much of the time home alone. Specialist palliative home care team services can be instrumental for sense of security in an uncertain situation. The aim of this study was to describe patients' and family caregivers' experiences of specialist palliative home care team actions that are identified by the participants as helping or hindering interventions. Six patients and seven family caregivers were interviewed using the enhanced critical incident technique. Ninety-five critical incidents and wish list items were identified. Providing adequate resources, keeping promises and being reliable, and creating partnerships are actions by specialist palliative care teams that patients and family caregivers experienced as helping in meeting expressed or anticipated needs in patients and family caregivers. Being reliable and including patients and family caregivers in partnerships help to continue with daily life, even though death may be close. Unmet needs resulted in experiences of disrespect or violation of personal space/integrity.
Palabras clave
Texto completo:
1
Banco de datos:
MEDLINE
Asunto principal:
Cuidados Paliativos
/
Grupo de Atención al Paciente
/
Cuidadores
/
Servicios de Atención de Salud a Domicilio
/
Neoplasias
Tipo de estudio:
Qualitative_research
Límite:
Aged
/
Aged80
/
Female
/
Humans
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Male
/
Middle aged
País como asunto:
Europa
Idioma:
En
Año:
2018
Tipo del documento:
Article