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Building a trusted framework for uncertainty assessment in rare diseases: suggestions for improvement (Response to "TRUST4RD: tool for reducing uncertainties in the evidence generation for specialised treatments for rare diseases").
Grimm, Sabine E; Pouwels, Xavier; Ramaekers, Bram L T; Wijnen, Ben; Knies, Saskia; Grutters, Janneke; Joore, Manuela A.
  • Grimm SE; Department of Clinical Epidemiology and Medical Technology Assessment, School for Public Health and Primary Care (CAPHRI), Maastricht University Medical Centre, P. Debyelaan 25, PO Box 5800, 6202 AZ, Maastricht, Netherlands. Sabine.grimm@mumc.nl.
  • Pouwels X; University of Twente, Hallenweg 5, 7522 NH, Enschede, Netherlands.
  • Ramaekers BLT; Department of Clinical Epidemiology and Medical Technology Assessment, School for Public Health and Primary Care (CAPHRI), Maastricht University Medical Centre, P. Debyelaan 25, PO Box 5800, 6202 AZ, Maastricht, Netherlands.
  • Wijnen B; Department of Clinical Epidemiology and Medical Technology Assessment, School for Public Health and Primary Care (CAPHRI), Maastricht University Medical Centre, P. Debyelaan 25, PO Box 5800, 6202 AZ, Maastricht, Netherlands.
  • Knies S; Zorginstituut Nederland, Eekholt 4, 1112 XH, Diemen, Netherlands.
  • Grutters J; Department for Health Evidence, Radboud University Medical Centre, Post 133, PO Box 9101, 6500 HB, Nijmegen, Netherlands.
  • Joore MA; Department of Clinical Epidemiology and Medical Technology Assessment, School for Public Health and Primary Care (CAPHRI), Maastricht University Medical Centre, P. Debyelaan 25, PO Box 5800, 6202 AZ, Maastricht, Netherlands.
Orphanet J Rare Dis ; 16(1): 62, 2021 02 01.
Article en En | MEDLINE | ID: mdl-33522936

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Producción de Medicamentos sin Interés Comercial / Enfermedades Raras Tipo de estudio: Guideline / Health_technology_assessment Límite: Humans Idioma: En Año: 2021 Tipo del documento: Article

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Producción de Medicamentos sin Interés Comercial / Enfermedades Raras Tipo de estudio: Guideline / Health_technology_assessment Límite: Humans Idioma: En Año: 2021 Tipo del documento: Article