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Time for Change? The Why, What and How of Promoting Innovation to Tackle Rare Diseases - Is It Time to Update the EU's Orphan Regulation? And if so, What Should be Changed?
Horgan, Denis; Moss, Barbara; Boccia, Stefania; Genuardi, Maurizio; Gajewski, Maciej; Capurso, Gabriele; Fenaux, Pierre; Gulbis, Beatrice; Pellegrini, Mariangela; Mañú Pereira, Maria Del Mar; Gutiérrez Valle, Victoria; Gutiérrez Ibarluzea, Iñaki; Kent, Alastair; Cattaneo, Ivana; Jagielska, Beata; Belina, Ivica; Tumiene, Birute; Ward, Adrian; Papaluca, Marisa.
  • Horgan D; European Alliance for Personalised Medicine, Brussels, Belgium.
  • Moss B; Europacolon (UK), London, United Kingdom.
  • Boccia S; Bowel Cancer UK, London, United Kingdom.
  • Genuardi M; Sezione di Igiene, Dipartimento Universitario Scienze della Vita e Sanità Pubblica, Università Cattolica del Sacro Cuore, Rome, Italy.
  • Gajewski M; Department of Woman and Child Health and Public Health - Public Health Area, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy.
  • Capurso G; European Society of Human Genetics, Vienna, Austria.
  • Fenaux P; Complex Operational Unit, Medical Genetics, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy.
  • Gulbis B; Alexion, Zurich, Switzerland.
  • Pellegrini M; PancreatoBiliary Endoscopy and EUS Division, Pancreas Translational and Clinical Research Center, San Raffaele Scientific Institute IRCCS, Milan, Italy.
  • Mañú Pereira MDM; Service d'hématologie seniors, Hôpital St Louis / Université Paris 7, Paris, France.
  • Gutiérrez Valle V; ERN-EuroBloodNet, the European Reference Network on Rare Hematological Disease, Paris, France.
  • Gutiérrez Ibarluzea I; ERN-EuroBloodNet, the European Reference Network on Rare Hematological Disease, Paris, France.
  • Kent A; Ht. ERASME-CUB, Brussels, LHUB-ULB, Brussels, Belgium.
  • Cattaneo I; ERN-EuroBloodNet, the European Reference Network on Rare Hematological Disease, Paris, France.
  • Jagielska B; Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis, Paris, France.
  • Belina I; ERN-EuroBloodNet, the European Reference Network on Rare Hematological Disease, Paris, France.
  • Tumiene B; University Hospital Vall d'Hebron - Vall d'Hebron Research Institute, Barcelona, Spain.
  • Ward A; ERN-EuroBloodNet, the European Reference Network on Rare Hematological Disease, Paris, France.
  • Papaluca M; University Hospital Vall d'Hebron - Vall d'Hebron Research Institute, Barcelona, Spain.
Biomed Hub ; 5(2): 1-11, 2020.
Article en En | MEDLINE | ID: mdl-33564657
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Texto completo: 1 Banco de datos: MEDLINE Tipo de estudio: Prognostic_studies / Risk_factors_studies Idioma: En Año: 2020 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Search on Google

Texto completo: 1 Banco de datos: MEDLINE Tipo de estudio: Prognostic_studies / Risk_factors_studies Idioma: En Año: 2020 Tipo del documento: Article