Exploring Popular Social Media Networks for Patients With Inflammatory Bowel Diseases: Insights for Better Care.
J Clin Gastroenterol
; 56(3): e203-e208, 2022 03 01.
Article
en En
| MEDLINE
| ID: mdl-33883517
ABSTRACT
GOAL The aim was to assess topics of interest and concerns among patients with inflammatory bowel diseases (IBD) who are active online. BACKGROUND:
Social media (SM) networks are a major communication tool for patients with IBD and health care professionals. PATIENTS ANDMETHODS:
We performed an anonymized investigation of SM networks for IBD patients; I-a thematic analysis of patients' posts, II-an online survey advertised through Facebook and other popular SM networks throughout November 2019.RESULTS:
Analyzing 2133 posts (2014 to 2019) revealed 18 topics of interest. The online survey was completed by 534 respondents [63%-Crohn's disease, 56%-female, median age-38 years (interquartile range 28.7 to 51.0)]. Most respondents (70%) were followed in referral centers, and 45% were receiving biological therapy. Respondents reported high satisfaction with IBD care and health care provider professionalism. The top 5 topics of interest were diet, lifestyle, complementary and alternative medicine, diagnostic test interpretation, and specialist referrals and reviews. Cluster analysis demonstrated that gender, income, and education level were associated with specific interest and concerns.CONCLUSION:
Patients' activity on SM is independent of their satisfaction with formal IBD care and rather reflects an ongoing need for information and support. These needs may be addressed both in clinical settings and through online tools.
Texto completo:
1
Banco de datos:
MEDLINE
Asunto principal:
Enfermedades Inflamatorias del Intestino
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Enfermedad de Crohn
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Medios de Comunicación Sociales
Tipo de estudio:
Diagnostic_studies
Límite:
Female
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Humans
Idioma:
En
Año:
2022
Tipo del documento:
Article