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Telemedicine visits in myasthenia gravis: Expert guidance and the Myasthenia Gravis Core Exam (MG-CE).
Guidon, Amanda C; Muppidi, Srikanth; Nowak, Richard J; Guptill, Jeffrey T; Hehir, Michael K; Ruzhansky, Katherine; Burton, Leeann B; Post, David; Cutter, Gary; Conwit, Robin; Mejia, Nicte I; Kaminski, Henry J; Howard, James F.
  • Guidon AC; Department of Neurology, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts, USA.
  • Muppidi S; Department of Neurology, Stanford University Hospital, Palo Alto, California, USA.
  • Nowak RJ; Department of Neurology, Yale University School of Medicine, New Haven, Connecticut, USA.
  • Guptill JT; Department of Neurology, Duke University, Durham, North Carolina, USA.
  • Hehir MK; Department of Neurological Sciences, Larner College of Medicine at the University of Vermont, Burlington, Vermont, USA.
  • Ruzhansky K; Department of Neurology, Medical University of South Carolina, Charleston, South Carolina, USA.
  • Burton LB; Department of Neurology, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts, USA.
  • Post D; Department of Neurology, Stanford University Hospital, Palo Alto, California, USA.
  • Cutter G; Department of Biostatistics, University of Alabama, Birmingham, Alabama, USA.
  • Conwit R; Division of Clinical Research, National Institute of Neurological Disorders and Stroke, National Institutes of Health, NINDS, Rockville, Maryland, USA.
  • Mejia NI; Department of Neurology, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts, USA.
  • Kaminski HJ; Department of Neurology, George Washington University Medical Center, Washington, District of Columbia, USA.
  • Howard JF; Department of Neurology, The University of North Carolina, Chapel Hill, North Carolina, USA.
Muscle Nerve ; 64(3): 270-276, 2021 09.
Article en En | MEDLINE | ID: mdl-33959997
ABSTRACT
INTRODUCTION/

AIMS:

Telemedicine may be particularly well-suited for myasthenia gravis (MG) due to the disorder's need for specialized care, its hallmark fluctuating muscle weakness, and the potential for increased risk of virus exposure among patients with MG during the coronavirus disease 2019 (COVID-19) pandemic during in-person clinical visits. A disease-specific telemedicine physical examination to reflect myasthenic weakness does not currently exist.

METHODS:

This paper outlines step-by-step guidance on the fundamentals of a telemedicine assessment for MG. The Myasthenia Gravis Core Exam (MG-CE) is introduced as a MG-specific, telemedicine, physical examination, which contains eight components (ptosis, diplopia, facial strength, bulbar strength, dysarthria, single breath count, arm strength, and sit to stand) and takes approximately 10 minutes to complete.

RESULTS:

Pre-visit preparation, remote ascertainment of patient-reported outcome scales and visit documentation are also addressed.

DISCUSSION:

Additional knowledge gaps in telemedicine specific to MG care are identified for future investigation.
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Examen Físico / Médicos / Educación del Paciente como Asunto / Telemedicina / COVID-19 / Miastenia Gravis Tipo de estudio: Guideline / Prognostic_studies Límite: Female / Humans / Male Idioma: En Año: 2021 Tipo del documento: Article

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Examen Físico / Médicos / Educación del Paciente como Asunto / Telemedicina / COVID-19 / Miastenia Gravis Tipo de estudio: Guideline / Prognostic_studies Límite: Female / Humans / Male Idioma: En Año: 2021 Tipo del documento: Article