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The burden of illness of patients with paroxysmal nocturnal haemoglobinuria receiving C5 inhibitors in France, Germany and the United Kingdom: Patient-reported insights on symptoms and quality of life.
Panse, Jens; Sicre de Fontbrune, Flore; Burmester, Pascale; Piggin, Maria; Matos, Joana E; Costantino, Halley; Wilson, Koo; Hakimi, Zalmai; Nazir, Jameel; Desgraz, Renaud; Fishman, Jesse; Persson, Emmelie; Kulasekararaj, Austin.
  • Panse J; Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation, University Hospital RWTH Aachen, Aachen, Germany.
  • Sicre de Fontbrune F; Center for Integrated Oncology (CIO) Aachen, Bonn, Cologne, Duesseldorf, Aachen, Germany.
  • Burmester P; Hematology transplant Unit-French Reference Center for Aplastic Anemia, Hôpital Saint-Louis, Paris, France.
  • Piggin M; Stiftung Lichterzellen, Cologne, Germany.
  • Matos JE; PNH Support, London, UK.
  • Costantino H; Kantar Health, New York, New York, USA.
  • Wilson K; Cerner Enviza (previously Kantar Health), Malvern, Pennsylvania, USA.
  • Hakimi Z; Swedish Orphan Biovitrum AB, Stockholm, Sweden.
  • Nazir J; Apellis Pharmaceuticals, Zug, Switzerland.
  • Desgraz R; Swedish Orphan Biovitrum AB, Stockholm, Sweden.
  • Fishman J; Apellis Pharmaceuticals, Zug, Switzerland.
  • Persson E; Department of Haematology, King's College Hospital, London, UK.
  • Kulasekararaj A; Swedish Orphan Biovitrum AB, Stockholm, Sweden.
Eur J Haematol ; 109(4): 351-363, 2022 Oct.
Article en En | MEDLINE | ID: mdl-35746830
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Hemoglobinuria Paroxística Tipo de estudio: Diagnostic_studies / Etiology_studies / Observational_studies / Prevalence_studies / Risk_factors_studies Límite: Adult / Humans País como asunto: Europa Idioma: En Año: 2022 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Search on Google

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Hemoglobinuria Paroxística Tipo de estudio: Diagnostic_studies / Etiology_studies / Observational_studies / Prevalence_studies / Risk_factors_studies Límite: Adult / Humans País como asunto: Europa Idioma: En Año: 2022 Tipo del documento: Article