Genomic tools for health: Secondary findings as findings to be shared.

Miner, Skye A; Similuk, Morgan; Jamal, Leila; Sapp, Julie; Berkman, Benjamin E

Miner, Skye A; Similuk, Morgan; Jamal, Leila; Sapp, Julie; Berkman, Benjamin E.

Miner SA; Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD; Department of Medical Humanities and Bioethics, College of Medicine, University of Arkansas for Medical Sciences, Little Rock, AR.
Similuk M; Centralized Sequencing Program, Division of Intramural Research, National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD.
Jamal L; Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD; NHGRI/NCI/JHU Genetic Counseling Training Program, National Human Genome Research Insitute, Bethesda, MD.
Sapp J; Center for Precision Health Research, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD; Division of Intramural Research, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD.
Berkman BE; Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD; Division of Intramural Research, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD. Electronic address: berkmanbe@mail.nih.gov.

Genet Med ; 24(11): 2220-2227, 2022 11.

Article en En | MEDLINE | ID: mdl-35980380

Asunto(s)

Familia; Padres; Niño; Humanos; Revelación; Genómica; Pruebas Genéticas

Palabras clave

Pediatric genetic testing; Research ethics; Right to an open future; Secondary findings

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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Padres / Familia Tipo de estudio: Diagnostic_studies / Prognostic_studies / Qualitative_research Límite: Child / Humans Idioma: En Año: 2022 Tipo del documento: Article

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