Towards values-based healthcare for inherited metabolic disorders: An overview of current practices for persons with liver glycogen storage disease and fatty acid oxidation disorders.
J Inherit Metab Dis
; 45(6): 1018-1027, 2022 11.
Article
en En
| MEDLINE
| ID: mdl-36088581
ABSTRACT
Value-based healthcare (VBHC) intends to achieve better outcomes for patients, to improve quality of patient care, with reduced costs. Four dimensions define a model of intimately related value-pillars personal value, allocative value, technical value, and societal value. VBHC is mostly applied in common diseases, and there are fundamental challenges in applying VBHC strategies to low volume, high complex healthcare situations, such as rare diseases, including inherited metabolic disorders. This article summarizes current practices at various academical domains (i.e., research, healthcare, education, and training) that (aim to) increase values at various value-pillars for persons with liver glycogen storage diseases or fatty acid oxidation disorders and their families. Future perspectives may include facilitating virtual networks to function as integrated practice units, improving measurement of outcomes, and creating information technology platforms to overcome the ethical, legal, societal, and technical challenges of data sharing for healthcare and research purposes.
Palabras clave
Texto completo:
1
Banco de datos:
MEDLINE
Asunto principal:
Acidosis
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Enfermedad del Almacenamiento de Glucógeno
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Errores Innatos del Metabolismo Lipídico
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Enfermedades Musculares
Límite:
Humans
Idioma:
En
Año:
2022
Tipo del documento:
Article