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Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening.
Raspa, Melissa; Kutsa, Oksana; Andrews, Sara M; Gwaltney, Angela Y; Mallonee, Erin; Creamer, Alissa; Han, Paul K J; Biesecker, Barbara B.
  • Raspa M; RTI International, Research Triangle Park, NC, USA. mraspa@rti.org.
  • Kutsa O; RTI International, Research Triangle Park, NC, USA.
  • Andrews SM; RTI International, Research Triangle Park, NC, USA.
  • Gwaltney AY; RTI International, Research Triangle Park, NC, USA.
  • Mallonee E; RTI International, Research Triangle Park, NC, USA.
  • Creamer A; Immune Deficiency Foundation, Towson, MD, USA.
  • Han PKJ; National Cancer Institute, Bethesda, MD, USA.
  • Biesecker BB; RTI International, Research Triangle Park, NC, USA.
Eur J Hum Genet ; 32(4): 392-398, 2024 Apr.
Article en En | MEDLINE | ID: mdl-36973394
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Tamizaje Neonatal / Inmunodeficiencia Combinada Grave Tipo de estudio: Diagnostic_studies / Qualitative_research / Screening_studies Límite: Child / Humans / Newborn Idioma: En Año: 2024 Tipo del documento: Article
Texto completo
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XML
PubMed Links
Search on Google

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Tamizaje Neonatal / Inmunodeficiencia Combinada Grave Tipo de estudio: Diagnostic_studies / Qualitative_research / Screening_studies Límite: Child / Humans / Newborn Idioma: En Año: 2024 Tipo del documento: Article