Nothing about us without us: Advocacy and engagement in genetic medicine.
Sci Transl Med
; 16(746): eadn2401, 2024 May 08.
Article
en En
| MEDLINE
| ID: mdl-38718133
ABSTRACT
The development of new genetic medicines to treat sickle cell disease highlights the need for greater collaboration between researchers and people with lived experiences. Drawing on the adage "Nothing about us, without us," we call for increased investments in community advocacy and engagement.
Texto completo:
1
Banco de datos:
MEDLINE
Asunto principal:
Defensa del Paciente
/
Anemia de Células Falciformes
Límite:
Humans
Idioma:
En
Año:
2024
Tipo del documento:
Article