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Moving Genomics into the Clinic: Platforms for Implementing Clinical Genomic Data-Sharing in Ways That Address Ethical, Legal and Social Implications.
Nicol, Dianne; Otlowski, Margaret; Reade, Keeley; Thorne, Natalie; Gaff, Clara.
  • Nicol D; Centre for Law and Genetics, University of Tasmania.
  • Otlowski M; Centre for Law and Genetics, University of Tasmania.
  • Reade K; Melbourne Genomics Health Alliance, Walter and Eliza Hall Institute of Medical Research.
  • Thorne N; Transcendomics Pty Ltd.
  • Gaff C; Melbourne Genomics Health Alliance, Walter and Eliza Hall Institute of Medical Research.
J Law Med ; 31(2): 258-272, 2024 Jun.
Article en En | MEDLINE | ID: mdl-38963246
ABSTRACT
This section explores the challenges involved in translating genomic research into genomic medicine. A number of priorities have been identified in the Australian National Health Genomics Framework for addressing these challenges. Responsible collection, storage, use and management of genomic data is one of these priorities, and is the primary theme of this section. The recent release of Genomical, an Australian data-sharing platform, is used as a case study to illustrate the type of assistance that can be provided to the health care sector in addressing this priority. The section first describes the National Framework and other drivers involved in the move towards genomic medicine. The section then examines key ethical, legal and social factors at play in genomics, with particular focus on privacy and consent. Finally, the section examines how Genomical is being used to help ensure that the move towards genomic medicine is ethically, legally and socially sound and that it optimises advances in both genomic and information technology.
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Banco de datos: MEDLINE Asunto principal: Genómica / Difusión de la Información Límite: Humans País como asunto: Oceania Idioma: En Año: 2024 Tipo del documento: Article
Search on Google
Banco de datos: MEDLINE Asunto principal: Genómica / Difusión de la Información Límite: Humans País como asunto: Oceania Idioma: En Año: 2024 Tipo del documento: Article