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Disseminating the F-Words for Child Development to Parents of Children With Developmental Disabilities in Iran: A Qualitative Pilot Feasibility Study.
Maleki, Zahra; Heidarabadi, Seifollah; Mohammadi, Ahmad; Azami-Aghdash, Saber; Rosenbaum, Peter; Cross, Andrea; Soper, Alice Kelen.
  • Maleki Z; Pediatric Health Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
  • Heidarabadi S; Pediatric Health Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
  • Mohammadi A; Department of Occupational Therapy, Faculty of Rehabilitation Sciences, Tabriz University of Medical Sciences, Tabriz, Iran.
  • Azami-Aghdash S; Tabriz Health Services Management Research Centre, Tabriz University of Medical Sciences, Tabriz, Iran.
  • Rosenbaum P; Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
  • Cross A; Department of Pediatrics, School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
  • Soper AK; CanChild, Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Child Care Health Dev ; 50(5): e13321, 2024 Sep.
Article en En | MEDLINE | ID: mdl-39169646
ABSTRACT

BACKGROUND:

Attitudes toward childhood disability have historically focused on biomedical efforts on 'fixing'. The introduction of WHO's ICF framework for health and Canadian researchers' 'F-words' (functioning, fitness, fun, friends, family and future) have significantly changed the field. To explore whether the F-words ideas influenced parents' perspectives on their child's abilities and rehabilitation goals, this qualitative pilot study introduced the F-words to Iranian parents with a child with a developmental disability.

METHODS:

This study was conducted in Tabriz, Iran, in 2023, using Iranian educational F-words materials built on ideas available on the CanChild F-words Knowledge Hub. Data were collected through semistructured interviews with five mothers of children <5 years old with a developmental disability before and after attending an 'F-words Awareness Session' and analysed using thematic analysis.

RESULTS:

In the preinterviews, six themes (and 20 subthemes) were identified (i) routines (5); (ii) challenges (4); (iii) parental concerns (3); (iv) child's needs and priorities (3); (v) the role of parents in satisfying needs and challenges (2); and (vi) expectations of rehabilitation (3). In the postinterview, the same six themes and four additional subthemes emerged.

CONCLUSION:

Findings from the pilot study showed that the intervention had an impact on the attitudes and behaviours of participants. Specifically, teaching about the F-words reduced parents' emphasis on the concept of 'normality'. Families' positive response to the 'F-words Awareness Session' indicates their openness to incorporating this approach into their daily lives. These findings highlight the potential benefits of utilizing the F-words in rehabilitation in Iran. Studies like these can serve as a foundation for developing effective strategies for integrating the F-words into existing rehabilitation practices in Iran.
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Discapacidades del Desarrollo / Estudios de Factibilidad / Investigación Cualitativa Límite: Adult / Child, preschool / Female / Humans / Male País como asunto: Asia Idioma: En Año: 2024 Tipo del documento: Article

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Discapacidades del Desarrollo / Estudios de Factibilidad / Investigación Cualitativa Límite: Adult / Child, preschool / Female / Humans / Male País como asunto: Asia Idioma: En Año: 2024 Tipo del documento: Article