How a family is affected when a child is born with anorectal malformation. Interviews with three patients and their parents.
J Pediatr Nurs
; 18(6): 423-32, 2003 Dec.
Article
em En
| MEDLINE
| ID: mdl-15058540
ABSTRACT
Increased knowledge about families with a malformed child affects nursing practice. This study illuminates the experiences and psychosocial situation of 3 patients with imperforate anus and their parents. A qualitative method has been used to analyze the data. We found that the parents' experiences of suffering were overwhelming and that the 3 patients had been depressed during periods. The patients were not as open as their parents; we need to devise better tools to explore and understand children's experiences. The children and their parents need special care and an opportunity to express their anxieties.
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Base de dados:
MEDLINE
Assunto principal:
Anus Imperfurado
/
Pais
/
Atitude Frente a Saúde
/
Criança Hospitalizada
/
Adolescente Hospitalizado
Tipo de estudo:
Etiology_studies
/
Qualitative_research
Limite:
Adolescent
/
Adult
/
Child
/
Female
/
Humans
/
Male
País como assunto:
Europa
Idioma:
En
Ano de publicação:
2003
Tipo de documento:
Article