I can not get a breath: experiences of living with advanced chronic obstructive pulmonary disease.
Int J Palliat Nurs
; 14(11): 526-31, 2008 Nov.
Article
em En
| MEDLINE
| ID: mdl-19060802
ABSTRACT
This study aims to explore the potential for palliative care among people living with advanced chronic obstructive pulmonary disease (COPD). Individual semi-structured interviews (n=13) were conducted with people who had a diagnosis of advanced COPD and were on optimal tolerated drug therapy, with their breathing volume (forced expiratory volume at less than 30%) or were on long-term oxygen therapy or non-invasion ventilation. Participants raised concerns about the uncertain trajectory of the illness and reported unmet palliative care needs with poor access to palliative care services. For most people, palliative care was associated with end of life; therefore, they were unwilling to discuss the issue. There was a wide acceptance that, medically, nothing more could be done. Findings also suggest that patients had unmet palliative care needs, requiring information and support. The research suggests the need for palliative care to be extended to all (regardless of diagnosis), with packages of care developed to target specific needs.
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Base de dados:
MEDLINE
Assunto principal:
Adaptação Psicológica
/
Atitude Frente a Saúde
/
Avaliação das Necessidades
/
Doença Pulmonar Obstrutiva Crônica
/
Dispneia
Tipo de estudo:
Etiology_studies
/
Prognostic_studies
/
Qualitative_research
Limite:
Aged
/
Female
/
Humans
/
Male
/
Middle aged
País como assunto:
Europa
Idioma:
En
Ano de publicação:
2008
Tipo de documento:
Article