Personalised epilepsy education intervention for adolescents and impact on knowledge acquisition and psychosocial function.
J Paediatr Child Health
; 47(5): 271-5, 2011 May.
Article
em En
| MEDLINE
| ID: mdl-21244556
ABSTRACT
AIM:
Patients frequently have poor knowledge of epilepsy, and this is associated with low self-esteem in adolescence. There is a paucity of data determining whether education alone can improve psychosocial outcome. The study investigated whether an educational intervention in adolescence 1 Increased understanding of epilepsy syndrome and general epilepsy knowledge. 2 Improved self-esteem, seizure self-efficacy and attitudes towards epilepsy.METHODS:
In session 1, adolescents were educated about their epilepsy syndrome in a one-on-one session, producing a personalised epilepsy medical record. In session 2, the impact of epilepsy on life-style was discussed. Pre- and post-intervention measures of knowledge, self-esteem, seizure self-efficacy and attitudes towards epilepsy were completed using validated scales. Focus groups explored the intervention's value.RESULTS:
Thirty adolescents with epilepsy participated (female 24, male 6; median age 16 years; partial symptomatic epilepsy 15, generalised idiopathic epilepsy 15). Self-knowledge of syndrome (P < 0.0001), general knowledge of epilepsy (P < 0.0001), attitudes towards epilepsy (P= 0.008) and seizure self-efficacy (P= 0.049) improved. Focus group data indicated that sessions were enjoyable and valuable, and the medical record was helpful.CONCLUSIONS:
The intervention significantly improved self-knowledge and general knowledge of epilepsy, attitudes towards epilepsy and seizure self-efficacy. This is the first study to demonstrate a positive impact on psychosocial outcomes following an educational intervention without a psychological component. The model has widespread application.
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Adaptação Psicológica
/
Conhecimentos, Atitudes e Prática em Saúde
/
Educação de Pacientes como Assunto
/
Epilepsia
Tipo de estudo:
Qualitative_research
Limite:
Adolescent
/
Adult
/
Female
/
Humans
/
Male
País como assunto:
Oceania
Idioma:
En
Ano de publicação:
2011
Tipo de documento:
Article