Responsiveness of the PedsQL to pain-related changes in health-related quality of life in pediatric sickle cell disease.
J Pediatr Psychol
; 37(7): 798-807, 2012 Aug.
Article
em En
| MEDLINE
| ID: mdl-22467881
ABSTRACT
OBJECTIVE:
To determine if caregiver report of the pediatric quality of life inventory (PedsQL) is responsive to changes in health-related quality of life (HRQL) associated with pain episodes in pediatric sickle cell disease (SCD).METHODS:
81 caregivers of children ages 2-19 years with SCD completed the PedsQL as part of routine psychosocial screenings at 2 time points, ranging from 6 to 18 months apart. Frequency of SCD-related pain episodes between time points was assessed using medical chart review.RESULTS:
The frequency of pain episodes between time points was a significant predictor of decreases in physical, psychosocial, and total HRQL, even after controlling for time interval, demographic, and medical variables.CONCLUSIONS:
The caregiver report of the PedsQL appears to be a useful tool for capturing changes in HRQL over time associated with pain episodes in SCD.
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Dor
/
Qualidade de Vida
/
Anemia Falciforme
Tipo de estudo:
Diagnostic_studies
/
Evaluation_studies
/
Prognostic_studies
/
Qualitative_research
Limite:
Adolescent
/
Adult
/
Child
/
Child, preschool
/
Female
/
Humans
/
Male
Idioma:
En
Ano de publicação:
2012
Tipo de documento:
Article