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Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents.
Lajonchere, Clara M; Wheeler, Barbara Y; Valente, Thomas W; Kreutzer, Cary; Munson, Aron; Narayanan, Shrikanth; Kazemzadeh, Abe; Cruz, Roxana; Martinez, Irene; Schrager, Sheree M; Schweitzer, Lisa; Chklovski, Tara; Hwang, Darryl.
Afiliação
  • Lajonchere CM; University of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.
  • Wheeler BY; Autism Speaks, Los Angeles, CA, USA.
  • Valente TW; USC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA. bwheeler@chla.usc.edu.
  • Kreutzer C; Department of Pediatrics, University of Southern California Keck School of Medicine, Los Angeles, CA, USA. bwheeler@chla.usc.edu.
  • Munson A; Department of Preventive Medicine, University of Southern California Keck School of Medicine, 2001 N. Soto St, Room 302 W, Los Angeles, CA, 90032-3628, USA.
  • Narayanan S; USC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA.
  • Kazemzadeh A; Department of Pediatrics, University of Southern California Keck School of Medicine, Los Angeles, CA, USA.
  • Cruz R; University of Southern California Davis School of Gerontology, 3715 McClintock Ave., Los Angeles, CA, 90089-0191, USA.
  • Martinez I; Department of Preventive Medicine, University of Southern California Keck School of Medicine, 2001 N. Soto St, Room 302 W, Los Angeles, CA, 90032-3628, USA.
  • Schrager SM; Loma Linda University Medical Center, 30554 Colina Verde, Temecula, CA, 92592, USA.
  • Schweitzer L; University of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.
  • Chklovski T; University of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.
  • Hwang D; Vixlet, 3420 S. Sepulveda Blvd. #419, Los Angeles, CA, 90034, USA.
J Autism Dev Disord ; 46(3): 1038-50, 2016 Mar.
Article em En | MEDLINE | ID: mdl-26563948
ABSTRACT
Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90% wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Hispânico ou Latino / Educação de Pacientes como Assunto / Disseminação de Informação / Pesquisa Biomédica / Transtorno do Espectro Autista Limite: Adolescent / Adult / Female / Humans / Male / Middle aged Idioma: En Ano de publicação: 2016 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Hispânico ou Latino / Educação de Pacientes como Assunto / Disseminação de Informação / Pesquisa Biomédica / Transtorno do Espectro Autista Limite: Adolescent / Adult / Female / Humans / Male / Middle aged Idioma: En Ano de publicação: 2016 Tipo de documento: Article