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The thrombotic microangiopathy Registry of North America: A United States multi-institutional TMA network.
Metjian, Ara; Tanhehco, Yvette C; Aqui, Nicole; Bhoj, Vijay G; Jamensky, Lita; Marques, Marisa B; Onwuemene, Oluwatoyosi; Pham, Huy P; Arepally, Gowthami M.
Afiliação
  • Metjian A; Division of Hematology, Department of Medicine, Duke University Medical Center, Durham, North Carolina. ara.metjian@duke.edu.
  • Tanhehco YC; Division of Transfusion Medicine, Department of Pathology and Cell Biology, Columbia University Medical Center, New York, New York.
  • Aqui N; Department of Laboratory Medicine and Therapeutic Pathology, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania.
  • Bhoj VG; Department of Laboratory Medicine and Therapeutic Pathology, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania.
  • Jamensky L; Department of Laboratory Medicine and Therapeutic Pathology, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania.
  • Marques MB; Department of Pathology, University of Alabama at Birmingham, Birmingham, Alabama.
  • Onwuemene O; Division of Hematology, Department of Medicine, Duke University Medical Center, Durham, North Carolina.
  • Pham HP; Department of Pathology, University of Alabama at Birmingham, Birmingham, Alabama.
  • Arepally GM; Division of Hematology, Department of Medicine, Duke University Medical Center, Durham, North Carolina.
J Clin Apher ; 31(5): 448-53, 2016 Oct.
Article em En | MEDLINE | ID: mdl-26575088
The thrombotic microangiopathy (TMA) Registry Network of North America (TRNA) is a collaborative network organized for the purpose of developing a multi-institutional registry and network to conduct clinical studies in a rare patient population. The TRNA was founded in 2013 by four academic medical centers (Columbia University Medical Center, Duke University Medical Center, University of Alabama at Birmingham, and University of Pennsylvania) to develop a national and demographically diverse dataset of patients with TMA. A clinical database was developed by network members using REDCap (Research Electronic Data Capture), a web-based database developed for clinical research. To facilitate rapid Institutional Review Board (IRB) approval at multiple sites, the TRNA utilized IRBshare, a streamlined IRB process to allow patient recruitment and enrollment into the TMA registry. This article reviews the process used to establish the TRNA network and discusses the significance of the first multi-institutional clinical apheresis network developed in the United States. J. Clin. Apheresis 31:448-453, 2016. © 2015 Wiley Periodicals, Inc.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Remoção de Componentes Sanguíneos / Sistema de Registros / Microangiopatias Trombóticas Limite: Humans País como assunto: America do norte Idioma: En Ano de publicação: 2016 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Remoção de Componentes Sanguíneos / Sistema de Registros / Microangiopatias Trombóticas Limite: Humans País como assunto: America do norte Idioma: En Ano de publicação: 2016 Tipo de documento: Article