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Survey of healthcare experiences of Australian adults living with rare diseases.
Molster, Caron; Urwin, Debra; Di Pietro, Louisa; Fookes, Megan; Petrie, Dianne; van der Laan, Sharon; Dawkins, Hugh.
Afiliação
  • Molster C; Office of Population Health Genomics, Department of Health, Perth, WA, Australia. caron.molster@health.wa.gov.au.
  • Urwin D; Office of Population Health Genomics, Department of Health, Perth, WA, Australia.
  • Di Pietro L; Genetic Support Network Victoria, Melbourne, VIC, Australia.
  • Fookes M; Rare Voices Australia, Sydney, NSW, Australia.
  • Petrie D; Genetic Alliance Australia, Sydney, NSW, Australia.
  • van der Laan S; Genetic and Rare Diseases Network, Perth, WA, Australia.
  • Dawkins H; Office of Population Health Genomics, Department of Health, Perth, WA, Australia.
Orphanet J Rare Dis ; 11: 30, 2016 Mar 24.
Article em En | MEDLINE | ID: mdl-27012247
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Atenção à Saúde / Doenças Raras Limite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged País como assunto: Oceania Idioma: En Ano de publicação: 2016 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Atenção à Saúde / Doenças Raras Limite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged País como assunto: Oceania Idioma: En Ano de publicação: 2016 Tipo de documento: Article