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Online information seeking by patients with bipolar disorder: results from an international multisite survey.
Conell, Jörn; Bauer, Rita; Glenn, Tasha; Alda, Martin; Ardau, Raffaella; Baune, Bernhard T; Berk, Michael; Bersudsky, Yuly; Bilderbeck, Amy; Bocchetta, Alberto; Bossini, Letizia; Paredes Castro, Angela Marianne; Cheung, Eric Yat Wo; Chillotti, Caterina; Choppin, Sabine; Del Zompo, Maria; Dias, Rodrigo; Dodd, Seetal; Duffy, Anne; Etain, Bruno; Fagiolini, Andrea; Garnham, Julie; Geddes, John; Gildebro, Jonas; Gonzalez-Pinto, Ana; Goodwin, Guy M; Grof, Paul; Harima, Hirohiko; Hassel, Stefanie; Henry, Chantal; Hidalgo-Mazzei, Diego; Kapur, Vaisnvy; Kunigiri, Girish; Lafer, Beny; Lam, Chun; Larsen, Erik Roj; Lewitzka, Ute; Licht, Rasmus; Lund, Anne Hvenegaard; Misiak, Blazej; Piotrowski, Patryk; Monteith, Scott; Munoz, Rodrigo; Nakanotani, Takako; Nielsen, René E; O'Donovan, Claire; Okamura, Yasushi; Osher, Yamima; Reif, Andreas; Ritter, Philipp.
Afiliação
  • Conell J; Department of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
  • Bauer R; Department of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
  • Glenn T; ChronoRecord Association, Fullerton, CA, USA.
  • Alda M; Department of Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.
  • Ardau R; Unit of Clinical Pharmacology, University Hospital of Cagliari, Cagliari, Italy.
  • Baune BT; Discipline of Psychiatry, School of Medicine, University of Adelaide, Adelaide, SA, Australia.
  • Berk M; IMPACT Strategic Research Centre, School of Medicine, Deakin University, Geelong, VIC, Australia.
  • Bersudsky Y; University Hospital Geelong, Barwon Health, Geelong, VIC, Australia.
  • Bilderbeck A; Department of Psychiatry, The University of Melbourne, Parkville, VIC, Australia.
  • Bocchetta A; Florey Institute of Neuroscience and Mental Health, Parkville, VIC, Australia.
  • Bossini L; Orygen Youth Health Research Centre, Parkville, VIC, Australia.
  • Paredes Castro AM; Department of Psychiatry, Faculty of Health Sciences, Ben Gurion University of the Negev; Beer Sheva Mental Health Center, Beer Sheva, Israel.
  • Cheung EY; Department of Psychiatry, University of Oxford, Warneford Hospital, Oxford, UK.
  • Chillotti C; Section of Neurosciences and Clinical Pharmacology, Department of Biomedical Sciences, University of Cagliari, Sardinia, Italy.
  • Choppin S; Department of Molecular Medicine, Department of Mental Health (DAI), University of Siena, University of Siena Medical Center (AOUS), Siena, Italy.
  • Del Zompo M; IMPACT Strategic Research Centre, School of Medicine, Deakin University, Geelong, VIC, Australia.
  • Dias R; University Hospital Geelong, Barwon Health, Geelong, VIC, Australia.
  • Dodd S; Department of General Adult Psychiatry, Castle Peak Hospital, Hong Kong, China.
  • Duffy A; Unit of Clinical Pharmacology, University Hospital of Cagliari, Cagliari, Italy.
  • Etain B; AP-HP, Hôpitaux Universitaires Henri-Mondor, Créteil, France.
  • Fagiolini A; Section of Neurosciences and Clinical Pharmacology, Department of Biomedical Sciences, University of Cagliari, Sardinia, Italy.
  • Garnham J; Bipolar Disorder Research Program, Department of Psychiatry, University of São Paulo Medical School, São Paulo, Brazil.
  • Geddes J; IMPACT Strategic Research Centre, School of Medicine, Deakin University, Geelong, VIC, Australia.
  • Gildebro J; University Hospital Geelong, Barwon Health, Geelong, VIC, Australia.
  • Gonzalez-Pinto A; Department of Psychiatry, The University of Melbourne, Parkville, VIC, Australia.
  • Goodwin GM; Department of Psychiatry, University of Calgary, Calgary, Canada.
  • Grof P; AP-HP, Hôpitaux Universitaires Henri-Mondor, INSERM U955 (IMRB), Université Paris Est, Créteil, France.
  • Harima H; Department of Molecular Medicine, Department of Mental Health (DAI), University of Siena, University of Siena Medical Center (AOUS), Siena, Italy.
  • Hassel S; Department of Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.
  • Henry C; Department of Psychiatry, University of Oxford, Warneford Hospital, Oxford, UK.
  • Hidalgo-Mazzei D; Department of Affective Disorders, Q, Mood Disorders Research Unit, Aarhus University Hospital, Aarhus, Denmark.
  • Kapur V; Department of Psychiatry, University Hospital of Alava, University of the Basque Country, CIBERSAM, Vitoria, Spain.
  • Kunigiri G; Department of Psychiatry, University of Oxford, Warneford Hospital, Oxford, UK.
  • Lafer B; Mood Disorders Center of Ottawa, Ottawa, Canada.
  • Lam C; Department of Psychiatry, University of Toronto, Ontario, Canada.
  • Larsen ER; Department of Psychiatry, Tokyo Metropolitan Matsuzawa Hospital, Setagaya, Tokyo, Japan.
  • Lewitzka U; Department of Psychology & Aston Brain Centre, Aston University, Birmingham, UK.
  • Licht R; AP-HP, Hôpitaux Universitaires Henri-Mondor, INSERM U955 (IMRB), Université Paris Est, Créteil, France.
  • Lund AH; Institut Pasteur, Unité Perception et Mémoire, F-75015, Paris, France.
  • Misiak B; Bipolar Disorders Program, Hospital Clinic, University of Barcelona, IDIBAPS, CIBERSAM, Barcelona, Catalonia, Spain.
  • Piotrowski P; Department of Clinical Psychology, NIMHANS, Bangalore, 560029, India.
  • Monteith S; Leicestershire Partnership NHS Trust, Leicester, UK.
  • Munoz R; Bipolar Disorder Research Program, Department of Psychiatry, University of São Paulo Medical School, São Paulo, Brazil.
  • Nakanotani T; Department of Psychiatry, Kowloon Hospital, Hong Kong, China.
  • Nielsen RE; Department of Affective Disorders, Q, Mood Disorders Research Unit, Aarhus University Hospital, Aarhus, Denmark.
  • O'Donovan C; Department of Psychiatry and Psychotherapy, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
  • Okamura Y; Aalborg University Hospital, Psychiatry, Aalborg, Denmark.
  • Osher Y; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
  • Reif A; Department of Affective Disorders, Q, Mood Disorders Research Unit, Aarhus University Hospital, Aarhus, Denmark.
  • Ritter P; Department of Psychiatry, Wroclaw Medical University, Wroclaw, Poland.
Int J Bipolar Disord ; 4(1): 17, 2016 Dec.
Article em En | MEDLINE | ID: mdl-27552813
ABSTRACT

BACKGROUND:

Information seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information.

METHODS:

A 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data.

RESULTS:

976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor.

CONCLUSION:

Online information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites.
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2016 Tipo de documento: Article
Texto completo
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XML
PubMed Links
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2016 Tipo de documento: Article