Advance Care Planning in Adults with Congenital Heart Disease: A Patient Priority.
Int J Cardiol
; 231: 105-109, 2017 Mar 15.
Article
em En
| MEDLINE
| ID: mdl-28096041
ABSTRACT
BACKGROUND:
Adult congenital heart disease (ACHD) patients with moderate or great defect complexity are at risk for premature death. Although early engagement in advance care planning (ACP) is recommended, previous research suggests that it seldom occurs.METHODS:
This study investigated ACHD patient preferences for ACP and factors that impact preferences. ACHD patients completed an ACP preferences questionnaire, the Hospital Anxiety and Depression Scale and a measure of attachment styles.RESULTS:
Of 152 ACHD patients (median age 33years, 50% female), 13% reported previous ACP discussions with providers and 21% had completed advance directives. On a 0-10 scale, the median rating for the importance of discussing ACP with providers was 7; 18years was identified as the most appropriate age to initiate this dialogue. Higher ratings for the importance of discussing ACP with providers was observed in patients who were female (p=0.03), had lower disease complexity (p=0.03), and had elevated anxiety symptoms (p=0.001); elevated anxiety remained significant in a multivariable model. Interest in receiving information about life expectancy (61% overall) was greater among patients with lower disease complexity (p=0.04) and a history of ≥2 cardiac surgeries (p=0.01); disease complexity remained significant in a multivariable model.CONCLUSIONS:
As a group, ACHD patients value the opportunity for ACP discussions and prefer earlier communication. Although some clinicians might avoid ACP discussions in patients who are generally more anxious or have less complex CHD, such avoidance does not appear to be warranted.Palavras-chave
Texto completo:
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Base de dados:
MEDLINE
Assunto principal:
Relações Médico-Paciente
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Atitude do Pessoal de Saúde
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Conhecimentos, Atitudes e Prática em Saúde
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Tomada de Decisões
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Planejamento Antecipado de Cuidados
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Cardiopatias Congênitas
Tipo de estudo:
Guideline
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Prognostic_studies
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Qualitative_research
Limite:
Adult
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Aged
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Female
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Humans
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Male
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Middle aged
Idioma:
En
Ano de publicação:
2017
Tipo de documento:
Article