The parents' perspective of the early diagnostic period of their child with hearing loss: information and support.
Int J Audiol
; 57(sup2): S3-S14, 2018 05.
Article
em En
| MEDLINE
| ID: mdl-28332410
ABSTRACT
OBJECTIVE:
This study aimed to explore the perspectives of caregivers regarding the information and support they received following diagnosis of their child's hearing loss.DESIGN:
A mixed methods explanatory sequential design was conducted. STUDY SAMPLE A total of 445 caregivers of children completed a written survey, and five parents participated in qualitative in-depth interviews.RESULTS:
The most common sources of information for caregivers were discussion with an audiologist, written information, and discussion with a medical professional. Approximately 85% of caregivers reported they were satisfied with the personal/emotional support and information received from service providers. Additional comments from 91 caregivers indicated that 11% experienced a breakdown in information transfer with health professionals. Interviews conducted with five parents from three families revealed two themes which described the diagnostic period as a difficult and emotional experience for parents (1) support and information provided during diagnosis what happens first? and (2) accessing early intervention services following a diagnosis of hearing loss navigating the maze.CONCLUSIONS:
The findings of this study give insight into the perspectives of caregivers who have a child diagnosed with hearing loss. The importance of providing timely information and personal/emotional support to caregivers cannot be underestimated.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Pais
/
Adaptação Psicológica
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Conhecimentos, Atitudes e Prática em Saúde
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Cuidadores
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Crianças com Deficiência
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Pessoas com Deficiência Auditiva
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Comunicação em Saúde
/
Intervenção Médica Precoce
/
Perda Auditiva
Tipo de estudo:
Diagnostic_studies
/
Observational_studies
/
Qualitative_research
/
Screening_studies
Limite:
Child
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Child, preschool
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Female
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Humans
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Infant
/
Male
País como assunto:
Oceania
Idioma:
En
Ano de publicação:
2018
Tipo de documento:
Article