Disclosures of Cystic Fibrosis-Related Information to Romantic Partners.
Qual Health Res
; 27(10): 1575-1585, 2017 Aug.
Article
em En
| MEDLINE
| ID: mdl-28728531
ABSTRACT
In this article, we offer insights into how individuals with cystic fibrosis (CF) share information about their disease with a romantic partner. Using communication privacy management as a sensitizing theoretical construct, four themes emerged following 13 qualitative interviews with persons with CF. Themes about sharing CF-related information with a romantic partner include weighing the risks and benefits of sharing information, the role of health-related triggered rules, the motivations for disclosures, and the reactions from outsiders. Implications of the research suggest a need for more nuanced understandings of how privacy rules are communicated in relationships, how the mismanagement of co-owned information influences future disclosures, how the public-private nature of rare genetic illnesses is managed, and how people with genetic illnesses make disclosure decisions.
Palavras-chave
chronic illness; communication; communication privacy management; cystic fibrosis; families; fertility; genetic disorders; genetics; health; illness and disease; information seeking; interpretive approach; lived experience; privacy; qualitative methods; quality of life; reproduction; romantic relationships; semistructured interviews; uncertainty
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Parceiros Sexuais
/
Comunicação
/
Fibrose Cística
/
Revelação
/
Disseminação de Informação
Tipo de estudo:
Qualitative_research
Limite:
Adult
/
Female
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Humans
/
Male
Idioma:
En
Ano de publicação:
2017
Tipo de documento:
Article