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Understanding the need for assistance with survey completion in people with Huntington disease.
Hahn, Elizabeth A; Downing, Nancy R; Stout, Julie C; Paulsen, Jane S; Ready, Becky; Goodnight, Siera; Lai, Jin-Shei; Miner, Jennifer A; Carlozzi, Noelle E.
Afiliação
  • Hahn EA; Department of Medical Social Sciences and Center for Patient-Centered Outcomes, Northwestern University Feinberg School of Medicine, 633 N. St. Clair St., Suite 1900, Chicago, IL, 60611, USA. e-hahn@northwestern.edu.
  • Downing NR; College of Nursing, Texas A&M University Health Science Center, Bryan, TX, USA.
  • Stout JC; School of Psychological Sciences, Institute of Cognitive and Clinical Neurosciences, Monash University, Clayton, VIC, Australia.
  • Paulsen JS; Departments of Neurology, Psychiatry, and Psychological and Brain Sciences, Carver College of Medicine, University of Iowa, Iowa City, IA, USA.
  • Ready B; Psychological and Brain Sciences, University of Massachusetts, Amherst, MA, USA.
  • Goodnight S; Department of Physical Medicine and Rehabilitation, Center for Clinical Outcomes Development and Application (CODA), University of Michigan, Ann Arbor, MI, USA.
  • Lai JS; Department of Medical Social Sciences and Center for Patient-Centered Outcomes, Northwestern University Feinberg School of Medicine, 633 N. St. Clair St., Suite 1900, Chicago, IL, 60611, USA.
  • Miner JA; Department of Physical Medicine and Rehabilitation, Center for Clinical Outcomes Development and Application (CODA), University of Michigan, Ann Arbor, MI, USA.
  • Carlozzi NE; Department of Physical Medicine and Rehabilitation, Center for Clinical Outcomes Development and Application (CODA), University of Michigan, Ann Arbor, MI, USA.
Qual Life Res ; 27(3): 801-810, 2018 Mar.
Article em En | MEDLINE | ID: mdl-29214414
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Doença de Huntington / Medidas de Resultados Relatados pelo Paciente Tipo de estudo: Qualitative_research Limite: Adult / Female / Humans / Male / Middle aged Idioma: En Ano de publicação: 2018 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Doença de Huntington / Medidas de Resultados Relatados pelo Paciente Tipo de estudo: Qualitative_research Limite: Adult / Female / Humans / Male / Middle aged Idioma: En Ano de publicação: 2018 Tipo de documento: Article