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Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine.
Witt, Stefanie; Rohenkohl, Anja; Bullinger, Monika; Sommer, Rachel; Kahrs, Sabine; Klingebiel, Karl-Heinz; Klingebiel, Ruzena; Quitmann, Julia.
Afiliação
  • Witt S; University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Martinistr. 52, 20246 Hamburg, Germany.
  • Rohenkohl A; University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Martinistr. 52, 20246 Hamburg, Germany.
  • Bullinger M; University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Martinistr. 52, 20246 Hamburg, Germany.
  • Sommer R; University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Martinistr. 52, 20246 Hamburg, Germany.
  • Kahrs S; German Association for People of Short Stature and their Families (BKMF e.V), Leinestrabe 2, 28199 Bremen, Germany.
  • Klingebiel KH; German Association for People of Short Stature and their Families (BKMF e.V), Leinestrabe 2, 28199 Bremen, Germany.
  • Klingebiel R; German Association for People of Short Stature and their Families (BKMF e.V), Leinestrabe 2, 28199 Bremen, Germany.
  • Quitmann J; University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Martinistr. 52, 20246 Hamburg, Germany.
Pediatr Endocrinol Rev ; 15(Suppl 1): 109-118, 2017 Nov.
Article em En | MEDLINE | ID: mdl-29292874

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Acondroplasia Tipo de estudo: Qualitative_research Limite: Adolescent / Humans Idioma: En Ano de publicação: 2017 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Acondroplasia Tipo de estudo: Qualitative_research Limite: Adolescent / Humans Idioma: En Ano de publicação: 2017 Tipo de documento: Article