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Challenges in Research and Health Technology Assessment of Rare Disease Technologies: Report of the ISPOR Rare Disease Special Interest Group.
Nestler-Parr, Sandra; Korchagina, Daria; Toumi, Mondher; Pashos, Chris L; Blanchette, Christopher; Molsen, Elizabeth; Morel, Thomas; Simoens, Steven; Kaló, Zoltán; Gatermann, Ruediger; Redekop, William.
Afiliação
  • Nestler-Parr S; Rare Access Ltd., Leamington Spa, England, UK.
  • Korchagina D; Mental Health and Public Health Unit (Inserm U669), University of Paris-Sud, Paris, France. Electronic address: dko@creativ-ceutical.com.
  • Toumi M; Public Health and Chronic Disease Laboratory, Aix-Marseille University, Marseille, France.
  • Pashos CL; Global Outcomes and Epidemiology Research, Takeda Pharmaceuticals International, Inc., Cambridge, MA, USA.
  • Blanchette C; College of Health and Human Services, University of North Carolina at Charlotte, Charlotte, NC, USA.
  • Molsen E; Scientific & Health Policy Initiatives, ISPOR, Lawrenceville, NJ, USA.
  • Morel T; KU Leuven Department of Pharmaceutical and Pharmacological Sciences, Leuven, Belgium.
  • Simoens S; KU Leuven Department of Pharmaceutical and Pharmacological Sciences, Leuven, Belgium.
  • Kaló Z; Department of Health Policy and Health Economics, Eötvös Loránd University (ELTE), Budapest, Hungary; Syreon Research Institute, Budapest, Hungary.
  • Gatermann R; Healthcare Policy and External Affairs Europe, CSL Behring, Biotherapies for Life, Marburg, Germany.
  • Redekop W; Health Technology Assessment, Erasmus University, Rotterdam, The Netherlands.
Value Health ; 21(5): 493-500, 2018 05.
Article em En | MEDLINE | ID: mdl-29753344
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Texto completo: 1 Eixos temáticos: Pesquisa_clinica Base de dados: MEDLINE Assunto principal: Avaliação da Tecnologia Biomédica / Conferências de Consenso como Assunto / Doenças Raras / Pesquisa Biomédica Tipo de estudo: Diagnostic_studies / Guideline / Health_technology_assessment / Prognostic_studies / Qualitative_research / Risk_factors_studies Limite: Humans Idioma: En Ano de publicação: 2018 Tipo de documento: Article
Texto completo
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Texto completo: 1 Eixos temáticos: Pesquisa_clinica Base de dados: MEDLINE Assunto principal: Avaliação da Tecnologia Biomédica / Conferências de Consenso como Assunto / Doenças Raras / Pesquisa Biomédica Tipo de estudo: Diagnostic_studies / Guideline / Health_technology_assessment / Prognostic_studies / Qualitative_research / Risk_factors_studies Limite: Humans Idioma: En Ano de publicação: 2018 Tipo de documento: Article