Psychosocial outcome and resilience after paediatric liver transplantation in young adults.
Clin Res Hepatol Gastroenterol
; 43(2): 155-160, 2019 04.
Article
em En
| MEDLINE
| ID: mdl-30737022
ABSTRACT
BACKGROUND AND OBJECTIVE:
The long-term psychosocial outcome of young adults after paediatric liver transplantation (LT) was investigated with the focus on day-to-day living. We aimed to capture patients' subjective perceptions of well-being and autonomy based on key physical outcome parameters.METHODS:
All patients following paediatric LT at Hannover Medical School born before 2002 with a post-transplant follow-up of at least four years were included in this study. This retrospective observational study compared psychosocial parameters obtained from a self-designed 77-item questionnaire with standard clinical outcome variables.RESULTS:
Eighty-two patients (male 57%) aged 13-41 years were included in the survey within a three-month period (response rate 41%). With an adherence rate of 33%, all but two patients were immunosuppressed. In total, 53 patients had transitioned to adult care largely without problems. Eighty-three percent (n = 68) evaluated their current health status as "(very) good". Sixty-seven patients (82%) did not experience health-related anxiety in daily life.CONCLUSIONS:
Our results demonstrate psychological stability and high self-esteem of young patients, as well as good integration into society and a high degree of normality during daily life after LT. Adherence rates are lower than anticipated and do not correlate with patients' understanding of their medical condition.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Nível de Saúde
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Transplante de Fígado
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Resiliência Psicológica
Tipo de estudo:
Observational_studies
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Prognostic_studies
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Qualitative_research
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Risk_factors_studies
Limite:
Adolescent
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Adult
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Child
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Female
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Humans
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Male
Idioma:
En
Ano de publicação:
2019
Tipo de documento:
Article