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Informing MS patients on treatment options: a consensus on the process of consent taking.
Tortorella, C; Solaro, C; Annovazzi, P; Boffa, L; Buscarinu, M C; Buttari, F; Calabrese, M; Cavalla, P; Cocco, E; Cordioli, C; De Luca, G; Di Filippo, M; Fantozzi, R; Ferraro, D; Gajofatto, A; Gallo, A; Lanzillo, R; Laroni, A; Fermo, S Lo; Malucchi, S; Maniscalco, G T; Moccia, M; Nociti, V; Paolicelli, D; Pesci, I; Prosperini, L; Ragonese, P; Tomassini, V; Clerici, V L A Torri; Rodegher, M; Gherardi, M; Gasperini, C.
Afiliação
  • Tortorella C; Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy. carla.tortorella@gmail.com.
  • Solaro C; Department of Rehabilitation, Mons L Novarese Hospital, Moncrivello, Italy.
  • Annovazzi P; Multiple Sclerosis Center, ASST Valle Olona, PO di Gallarate, (VA), Italy.
  • Boffa L; Department of Neurosciences, MS Center, Tor Vergata University, Rome, Italy.
  • Buscarinu MC; Department of Neurosciences, Mental Health and Sensory Organs Sapienza University Rome, Rome, Italy.
  • Buttari F; I.R.C.C.S. Istituto Neurologico Mediterraneo NEUROMED, Pozzilli, Italy.
  • Calabrese M; Neurology B, Department of Neurosciences Biomedicine and Movements, University of Verona, Verona, Italy.
  • Cavalla P; MS Center (P.C.), City of Health & Science University Hospital, Turin, Italy.
  • Cocco E; Department Medical Science and Public Health, University of Cagliari, Cagliari, Italy.
  • Cordioli C; Multiple Sclerosis Center, ospedale di Montichiari, Spedali Civili di Brescia, Montichiari, Italy.
  • De Luca G; Neurology Clinic, Multiple Sclerosis Center SS. Annunziata Hospital, Chieti, Italy.
  • Di Filippo M; Clinica Neurologica, Dipartimento di Medicina, Università di Perugia, Perugia, Italy.
  • Fantozzi R; I.R.C.C.S. Istituto Neurologico Mediterraneo NEUROMED, Pozzilli, Italy.
  • Ferraro D; Department of Biomedical, Metabolic and Neurosciences, University of Modena and Reggio Emilia, Modena, Italy.
  • Gajofatto A; Department of Neuroscience, Biomedicine and Movement Sciences, University of Verona, Verona, Italy.
  • Gallo A; Department of Medical, Surgical, Neurological, Metabolic and Aging Science, University of Campania, Naples, Italy.
  • Lanzillo R; Multiple Sclerosis Clinical Care and Research Centre, Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Naples, Italy.
  • Laroni A; Department of Neuroscience, Ophthalmology, Genetics, Maternal and Child Health and Center of Excellence for Biomedical Research, University of Genova, Genoa, Italy.
  • Fermo SL; IRCCS Ospedale Policlinico San Martino, Genoa, Italy.
  • Malucchi S; Clinica Neurologica A.O.U. Policlinico-Vittorio Emanuele Catania, Catania, Italy.
  • Maniscalco GT; Neurologia 2-CRESM, AOU San Luigi Gonzaga, Orbassano, Italy.
  • Moccia M; Department of Neurology and Stroke Unit, "A. Cardarelli Hospital", Naples, Italy.
  • Nociti V; Multiple Sclerosis Clinical Care and Research Centre, Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Naples, Italy.
  • Paolicelli D; Queen Square MS Centre, Department of Neuroinflammation, UCL Queen Square Institute of Neurology, Faculty of Brain Sciences, University College London, London, UK.
  • Pesci I; Istituto di Neurologia, Fondazione Policlinico Universitario 'A Gemelli' IRCCS, Rome, Italy.
  • Prosperini L; Department of Basic Medical Sciences, Neurosciences, and Sense Organs, University of Bari, Bari, Italy.
  • Ragonese P; Ospedale di Vaio, Centro SM, Fidenza, Parma, Italy.
  • Tomassini V; Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy.
  • Clerici VLAT; Department of Biomedicine, Neurosciences and Advanced Diagnostic, Dipartimento di Biomedicina, Neuroscienze e Diagnostica Avanzata, Palermo, Italy.
  • Rodegher M; Department of Neurosciences, Imaging and Clinical Sciences, School of Medicine, Institute for Advanced Biomedical Technologies (ITAB), University of Chieti-Pescara "G. d'Annunzio, Chieti, Italy.
  • Gherardi M; Division of Psychological Medicine and Clinical Neurosciences, Cardiff University School of Medicine, University Hospital of Wales, Cardiff, UK.
  • Gasperini C; Neuro-immunology and Neuromuscolar Diseases Unit, IRCCS Foundation Carlo Besta Neurological Institute, Milan, Italy.
Neurol Sci ; 41(8): 2249-2253, 2020 Aug.
Article em En | MEDLINE | ID: mdl-32240416
ABSTRACT
In the last years, change in multiple sclerosis (MS) therapeutic scenario has highlighted the need for an improved doctor-patient communication in advance of treatment initiation in order to allow patient's empowerment in the decision-making process.

AIMS:

The aims of our project were to review the strategies used by Italian MS specialists to inform patients about treatment options and to design a multicentre shared document that homogenizes the information about disease-modifying treatment (DMTs) and the procedure of taking informed consent in clinical practice.

RESULTS:

The new resource, obtained by consensus among 31 neurologists from 27 MS Centres in Italy with the supervision of a medico-legal advisor, received the aegis of Italian Neurological Society (SIN) and constitutes a step toward a standardized decision process around DMTs in MS.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Consentimento Livre e Esclarecido / Esclerose Múltipla Tipo de estudo: Guideline / Prognostic_studies Limite: Humans País como assunto: Europa Idioma: En Ano de publicação: 2020 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Consentimento Livre e Esclarecido / Esclerose Múltipla Tipo de estudo: Guideline / Prognostic_studies Limite: Humans País como assunto: Europa Idioma: En Ano de publicação: 2020 Tipo de documento: Article