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Perceptions and experiences of living with type 1 diabetes among Latino adolescents and parents with limited English proficiency.
Joiner, Kevin L; DeJonckheere, Melissa; Whittemore, Robin; Grey, Margaret.
Afiliação
  • Joiner KL; School of Nursing, University of Michigan, Ann Arbor, Michigan.
  • DeJonckheere M; Department of Family Medicine, University of Michigan, Ann Arbor, Michigan.
  • Whittemore R; School of Nursing, Yale University, Orange, Connecticut.
  • Grey M; School of Nursing, Yale University, Orange, Connecticut.
Res Nurs Health ; 43(3): 263-273, 2020 Jun.
Article em En | MEDLINE | ID: mdl-32281136
We explored perceptions and experiences of living with type 1 diabetes mellitus (T1DM) among U.S. Latino adolescents (age 12-19 years) with T1DM and parents with limited English proficiency. We used a qualitative descriptive approach with semi-structured interviews of adolescents together with their parents. Interview data were reviewed, coded, and combined into themes about participant experiences with T1DM. Twenty-four adolescents (mean age: 15.4 years) and 23 parents participated. Analysis resulted in three themes: (a) Understanding and adapting to T1DM (i.e., initial fear and misunderstandings of T1DM; adolescents' reflections on living with a chronic health condition); (b) Coming to terms with social and environmental influences on T1DM self-management (i.e., T1DM as disruptive to school and social activities; dealing with stigma and judgments related to diabetes); and, (c) Integrating T1DM self-management expectations with components of Latino cultures (i.e., orientation toward family well-being; parent concerns about cultural preferences that influence food choices, positive influence of spirituality and religiousness; parental views of their current health care in comparison to that available in their place of birth). Adolescents and their parents reported experiences that are universal to adolescents with T1DM in addition to challenges that are unique to Latinos. Efforts aimed at improving T1DM self-management during adolescence with this population need to be tailored to meet the unique social and cultural contexts and delivered in a culturally and linguistically congruent manner.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Autocuidado / Hispânico ou Latino / Saúde do Adolescente / Diabetes Mellitus Tipo 1 / Autogestão Tipo de estudo: Qualitative_research Limite: Adolescent / Adult / Aged / Child / Female / Humans / Male / Middle aged País como assunto: America do norte Idioma: En Ano de publicação: 2020 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Autocuidado / Hispânico ou Latino / Saúde do Adolescente / Diabetes Mellitus Tipo 1 / Autogestão Tipo de estudo: Qualitative_research Limite: Adolescent / Adult / Aged / Child / Female / Humans / Male / Middle aged País como assunto: America do norte Idioma: En Ano de publicação: 2020 Tipo de documento: Article