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The Status Quo of Rare Diseases Centres for the Development of a Clinical Decision Support System - A Cross-Sectional Study.
Schaaf, Jannik; Sedlmayr, Martin; Prokosch, Hans-Ulrich; Ganslandt, Thomas; Schade-Brittinger, Carmen; von Wagner, Michael; Kadioglu, Dennis; Schubert, Katharina; Lee-Kirsch, Min Ae; Kraemer, Bernhard K; Winner, Beate; Mueller, Tobias; Schaefer, Juergen R; Wagner, Thomas O F; Bruckner-Tuderman, Leena; Tuescher, Oliver; Boeker, Martin; Storf, Holger.
Afiliação
  • Schaaf J; Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany.
  • Sedlmayr M; Institute for Medical Informatics and Biometry, Carl Gustav Carus Faculty of Medicine, Technical University of Dresden, Dresden, Germany.
  • Prokosch HU; Chair of Medical Informatics, Department of Medical Informatics, Biometrics and Epidemiology, Friedrich-Alexander University Erlangen-Nürnberg, Erlangen, Germany.
  • Ganslandt T; Heinrich-Lanz-Centre for Digital Health, Department of Biomedical Informatics, University Medicine Mannheim, Mannheim, Germany.
  • Schade-Brittinger C; Chair of the Coordinating Centre for Clinical Trials, Philipps University Marburg, Marburg, Germany.
  • von Wagner M; Executive Department for Medical IT-Systems and Digitalisation, University Hospital Frankfurt, Frankfurt, Germany.
  • Kadioglu D; Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany.
  • Schubert K; Central German Competence Network for Rare Diseases, University Hospitals Magdeburg & Halle, Germany.
  • Lee-Kirsch MA; University Centre for Rare Diseases, University Hospital Carl Gustav Carus Dresden, Dresden, Germany.
  • Kraemer BK; Mannheim Centre for Rare Diseases, University Medicine Mannheim, Medical Faculty Mannheim of the University of Heidelberg, Mannheim, Germany.
  • Winner B; Centre for Rare Diseases Erlangen, University Hospital Erlangen, Erlangen, Germany.
  • Mueller T; Centre for undiagnosed and rare diseases, University Hospital Gießen and Marburg, Marburg, Germany.
  • Schaefer JR; Centre for undiagnosed and rare diseases, University Hospital Gießen and Marburg, Marburg, Germany.
  • Wagner TOF; Frankfurt Reference Centre for Rare Diseases, University Hospital Frankfurt, Frankfurt, Germany.
  • Bruckner-Tuderman L; Freiburg Centre for Rare Diseases, Medical Faculty and Medical Centre - University of Freiburg, Freiburg, Germany.
  • Tuescher O; Centre for Rare Diseases of the Nervous System, University Medicine Mainz, Mainz, Germany.
  • Boeker M; Institute of Medical Biometry and Statistics, Medical Faculty and Medical Centre - University of Freiburg, Freiburg, Germany.
  • Storf H; Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany.
Stud Health Technol Inform ; 271: 176-183, 2020 Jun 23.
Article em En | MEDLINE | ID: mdl-32578561
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Texto completo: 1 Eixos temáticos: Pesquisa_clinica Base de dados: MEDLINE Assunto principal: Sistemas de Apoio a Decisões Clínicas Tipo de estudo: Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Limite: Humans País como assunto: Europa Idioma: En Ano de publicação: 2020 Tipo de documento: Article
Texto completo
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Texto completo: 1 Eixos temáticos: Pesquisa_clinica Base de dados: MEDLINE Assunto principal: Sistemas de Apoio a Decisões Clínicas Tipo de estudo: Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Limite: Humans País como assunto: Europa Idioma: En Ano de publicação: 2020 Tipo de documento: Article