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Quality of life and associated factors in siblings of children with severe motor and intellectual disabilities: A cross-sectional study.
Wakimizu, Rie; Fujioka, Hiroshi; Nishigaki, Kaori; Matsuzawa, Akemi.
Afiliação
  • Wakimizu R; Department of Child Health Care Nursing, Division of Health Innovation and Nursing, Faculty of Medicine, University of Tsukuba, Ibaraki, Japan.
  • Fujioka H; Department of Nursing, Faculty of Health Sciences, Ibaraki Prefectural University of Health Sciences, Ibaraki, Japan.
  • Nishigaki K; Department of Child Health Nursing, Graduate School of Nursing Sciences, St. Luke's International University, Tokyo, Japan.
  • Matsuzawa A; Department of Nursing, School of Nursing, Ibaraki Christian University, Ibaraki, Japan.
Nurs Health Sci ; 22(4): 977-987, 2020 Dec.
Article em En | MEDLINE | ID: mdl-32662581
This study examined quality of life and its associated factors in siblings of children with severe motor and intellectual disabilities in Japan. The participants were 789 siblings of children with a disability and their primary caregivers. We used the Kinder Lebensqualität Fragebogen questionnaire to assess the quality of life of siblings. The mean age of the siblings was 12.21 ± 3.07 years, and the mean quality of life score was 69.63 ± 12.55 points, which is higher than that of the general population of children of the same age. It was revealed that the following factors contributed to higher quality of life scores: a closer relationship with the child with a disability, younger age, the primary caregiver's lower care burden, later birth order of siblings (i.e., younger siblings), higher family empowerment, and female gender of siblings. The relationship with the child with a disability had the strongest influence on siblings' quality of life. Our study suggests the need for nursing interventions that focus on the whole family to enhance siblings' quality of life.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Crianças com Deficiência / Irmãos Tipo de estudo: Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Limite: Adolescent / Child / Female / Humans / Male País como assunto: Asia Idioma: En Ano de publicação: 2020 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Crianças com Deficiência / Irmãos Tipo de estudo: Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Limite: Adolescent / Child / Female / Humans / Male País como assunto: Asia Idioma: En Ano de publicação: 2020 Tipo de documento: Article