Impact of Interdisciplinary Team Care for Children With 22q11.2 Deletion Syndrome.
Cleft Palate Craniofac J
; 57(12): 1362-1369, 2020 12.
Article
em En
| MEDLINE
| ID: mdl-32787583
ABSTRACT
OBJECTIVE:
To evaluate disease-specific guideline adherence among children with 22q11.2 deletion syndrome receiving multidisciplinary team care through a 22q specialty clinic compared to children not receiving team care.DESIGN:
Retrospective chart review; quality improvement project.SETTING:
Tertiary care pediatric hospital. PATIENTS One hundred eighty-nine patients with 22q11.2 deletion syndrome were categorized into those receiving team care and those not receiving team care. Guideline adherence was compared between the 2 groups. MAIN OUTCOME MEASURE(S) Percent adherence across 8 disease-specific guidelines.RESULTS:
A Welch t test revealed mean adherence among patients receiving team care was significantly higher (83% vs 42%, P < .001) compared those not receiving team care. Among team patients with a single 22q Center visit, a paired samples t test showed that mean adherence increased from 63% before the clinic encounter to 86% six months after the encounter (P < .001). Some guidelines were more likely to be associated with provider nonadherence, whereas others were more likely to be associated with patient nonadherence.CONCLUSIONS:
Multidisciplinary team care is associated with significantly higher guideline adherence in children with 22q11DS. Additional research is needed to investigate the effect of team care on long-term health outcomes in children with 22q11DS.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Craniossinostoses
/
Síndrome de DiGeorge
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Síndrome de Marfan
Tipo de estudo:
Guideline
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Observational_studies
/
Risk_factors_studies
Limite:
Child
/
Humans
Idioma:
En
Ano de publicação:
2020
Tipo de documento:
Article