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Rehabilitation models of care for children and youth living with traumatic brain and/or spinal cord injuries: A focus on family-centred care, psychosocial wellbeing, and transitions.
Botchway, Edith N; Knight, Sarah; Muscara, Frank; Greenham, Mardee; D'Cruz, Kate; Bonyhady, Bruce; Anderson, Vicki; Scheinberg, Adam.
Afiliação
  • Botchway EN; Murdoch Children's Research Institute, Parkville, Australia.
  • Knight S; The Royal Children's Hospital, Parkville, Australia.
  • Muscara F; The University of Melbourne, Parkville, Australia.
  • Greenham M; Murdoch Children's Research Institute, Parkville, Australia.
  • D'Cruz K; The Royal Children's Hospital, Parkville, Australia.
  • Bonyhady B; The University of Melbourne, Parkville, Australia.
  • Anderson V; Victorian Paediatric Rehabilitation Service, Parkville, Australia.
  • Scheinberg A; Murdoch Children's Research Institute, Parkville, Australia.
Neuropsychol Rehabil ; 32(4): 537-559, 2022 May.
Article em En | MEDLINE | ID: mdl-33108961
To describe current rehabilitation models of care and programmes, in Australia and internationally, related to family-centred care, psychosocial support, and transitions used for children and youth who have sustained major traumatic brain and/or spinal cord injuries. Fourteen services were interviewed, including eight medical rehabilitation services, three community-based rehabilitation services, two insurance services, and one state-wide education service provider. Semi-structured interviews were transcribed and analysed using qualitative content analysis in NVivo. Compared to the number of services supporting children and youth with traumatic brain injury, a very limited number supported those with spinal cord injury. Although valued and often included in the model of care, family-centred care was rarely systematically evaluated by the services. Most services provided psychosocial and transition support to children and youth, and their families in the short-term post-injury, but not in the long-term. Several challenges also hindered the smooth delivery of these support services, including poor communication between service providers. These findings show that services aimed to provide the best possible care to these children and youth, and their families; guided by rehabilitation models of care. However, challenges persist with regards to delivering family-centred care, coordinating return to school, and providing long-term support for psychosocial problems and transition.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Traumatismos da Medula Espinal / Reabilitação Psiquiátrica / Lesões Encefálicas Traumáticas Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Adolescent / Child / Humans País como assunto: Oceania Idioma: En Ano de publicação: 2022 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Traumatismos da Medula Espinal / Reabilitação Psiquiátrica / Lesões Encefálicas Traumáticas Tipo de estudo: Prognostic_studies / Qualitative_research Limite: Adolescent / Child / Humans País como assunto: Oceania Idioma: En Ano de publicação: 2022 Tipo de documento: Article