Informing Parents about Newborn Screening: A European Comparison Study.

IJzebrink, Amber; van Dijk, Tessa; Franková, Vera; Loeber, Gerard; Kozich, Viktor; Henneman, Lidewij; Jansen, Marleen

IJzebrink, Amber; van Dijk, Tessa; Franková, Vera; Loeber, Gerard; Kozich, Viktor; Henneman, Lidewij; Jansen, Marleen.

Afiliação

IJzebrink A; Department of Clinical Genetics, Section Community Genetics, Amsterdam University Medical Center, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands.
van Dijk T; Department of Clinical Genetics, Section Community Genetics, Amsterdam University Medical Center, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands.
Franková V; Department of Pediatrics and Inherited Metabolic Disorders, Charles University First Faculty of Medicine and General University Hospital Praque, 128 08 Prague 2, Czech Republic.
Loeber G; Institute for Medical Humanities, First Faculty of Medicine, Charles University Praque, 128 08 Praque 2, Czech Republic.
Kozich V; International Society for Neonatal Screening, 3721CK Bilthoven, The Netherlands.
Henneman L; Department of Pediatrics and Inherited Metabolic Disorders, Charles University First Faculty of Medicine and General University Hospital Praque, 128 08 Prague 2, Czech Republic.
Jansen M; Department of Clinical Genetics, Section Community Genetics, Amsterdam University Medical Center, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands.

Int J Neonatal Screen ; 7(1)2021 Feb 26.

Article em En | MEDLINE | ID: mdl-33652810

Palavras-chave

European information products; informed decision; knowledge aspects; newborn screening (NBS); parental information

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Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Diagnostic_studies / Prognostic_studies / Screening_studies Idioma: En Ano de publicação: 2021 Tipo de documento: Article

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