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Capturing Data in Rare Disease Registries to Support Regulatory Decision Making: A Survey Study Among Industry and Other Stakeholders.
Jonker, Carla J; de Vries, Sieta T; van den Berg, H Marijke; McGettigan, Patricia; Hoes, Arno W; Mol, Peter G M.
Afiliação
  • Jonker CJ; Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, University of Utrecht, Utrecht, The Netherlands. c.jonker@cbg-meb.nl.
  • de Vries ST; Dutch Medicines Evaluation Board (CBG-MEB), Graadt van Roggenweg 500, 3531 AH, Utrecht, The Netherlands. c.jonker@cbg-meb.nl.
  • van den Berg HM; Dutch Medicines Evaluation Board (CBG-MEB), Graadt van Roggenweg 500, 3531 AH, Utrecht, The Netherlands.
  • McGettigan P; Department Clinical Pharmacy and Pharmacology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
  • Hoes AW; PedNet Haemophilia Research Foundation, Baarn, The Netherlands.
  • Mol PGM; William Harvey Research Institute, Queen Mary University of London, London, UK.
Drug Saf ; 44(8): 853-861, 2021 08.
Article em En | MEDLINE | ID: mdl-34091881
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Medicamentos Genéricos / Doenças Raras Tipo de estudo: Prognostic_studies Limite: Humans Idioma: En Ano de publicação: 2021 Tipo de documento: Article
Texto completo
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Medicamentos Genéricos / Doenças Raras Tipo de estudo: Prognostic_studies Limite: Humans Idioma: En Ano de publicação: 2021 Tipo de documento: Article