Prospective quality of life outcomes in pediatric fecal incontinence following bowel management.
J Pediatr Surg
; 56(8): 1459-1464, 2021 Aug.
Article
em En
| MEDLINE
| ID: mdl-34103148
ABSTRACT
BACKGROUND:
Severe fecal incontinence (FI) is common in patients both with and without anorectal malformations. Whether a formal bowel management program (BMP) has significant effects on FI, psychosocial development of the child, and caregiver stress is poorly understood. We hypothesize that BMP participation results in long-term clinical and quality of life (QOL) improvements for patients and caregivers.METHODS:
Using a prospective cohort study over three years, 342 children (age 3-12 years) and caregivers were followed for one year after attending a week-long BMP, during which a regimen was tailored to promote daily stool evacuation.FI QOL was measured with the validated Cincinnati Fecal Incontinence Scale (CINCY-FIS), evaluating multiple subscales, including parental stress. Scores were obtained at multiple timepoints following BMP (baseline, 2 weeks, 3 months, 1 year).RESULTS:
Within 2 weeks, BMP participation significantly improved FI with increased frequency of daily daytime voluntary bowel movements (20%-70%, p < 0.001) and decreased daily daytime and nighttimeinvoluntary bowel movements (60%-20%, p < 0.001; 30%-10%, p < 0.05). Marked improvements in CINCY-FIS were observed across multiple QOL subscales, with the greatest in parental stress, and sustained through one year.CONCLUSIONS:
BMP results in significant and sustained improvement in FI and QOL for patients and caregivers.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Qualidade de Vida
/
Incontinência Fecal
Tipo de estudo:
Etiology_studies
/
Observational_studies
Limite:
Child
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Child, preschool
/
Humans
Idioma:
En
Ano de publicação:
2021
Tipo de documento:
Article