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[Making COVID-19 research data more accessible-building a nationwide information infrastructure]. / COVID-19-Forschungsdaten leichter zugänglich machen ­ Aufbau einer bundesweiten Informationsinfrastruktur.
Schmidt, Carsten Oliver; Fluck, Juliane; Golebiewski, Martin; Grabenhenrich, Linus; Hahn, Horst; Kirsten, Toralf; Klammt, Sebastian; Löbe, Matthias; Sax, Ulrich; Thun, Sylvia; Pigeot, Iris.
Afiliação
  • Schmidt CO; Institut für Community Medicine, Universitätsmedizin Greifswald, Walther-Rathenau-Str. 48, 17475, Greifswald, Deutschland. carsten.schmidt@uni-greifswald.de.
  • Fluck J; ZB MED - Informationszentrum Lebenswissenschaften, Bonn, Deutschland.
  • Golebiewski M; Institut für Geodäsie und Geoinformation, Rheinische Friedrich-Wilhelms-Universität Bonn, Bonn, Deutschland.
  • Grabenhenrich L; Abteilung Bioinformatik, Fraunhofer Institut SCAI, Sankt Augustin, Deutschland.
  • Hahn H; Heidelberger Institut für Theoretische Studien (HITS), Heidelberg, Deutschland.
  • Kirsten T; Robert Koch-Institut, Berlin, Deutschland.
  • Klammt S; Institut für Digitale Medizin, Fraunhofer MEVIS, Bremen, Deutschland.
  • Löbe M; Jacobs University, Bremen, Deutschland.
  • Sax U; Fakultät Angewandte Computer- und Biowissenschaften, Hochschule Mittweida, Mittweida, Deutschland.
  • Thun S; Institut für Medical Data Science, Universitätsmedizin Leipzig, Leipzig, Deutschland.
  • Pigeot I; Netzwerk der Koordinierungszentren für Klinische Studien - KKS-Netzwerk e. V., Berlin, Deutschland.
Article em De | MEDLINE | ID: mdl-34297162
Public health research and epidemiological and clinical studies are necessary to understand the COVID-19 pandemic and to take appropriate action. Therefore, since early 2020, numerous research projects have also been initiated in Germany. However, due to the large amount of information, it is currently difficult to get an overview of the diverse research activities and their results. Based on the "Federated research data infrastructure for personal health data" (NFDI4Health) initiative, the "COVID-19 task force" is able to create easier access to SARS-CoV-2- and COVID-19-related clinical, epidemiological, and public health research data. Therefore, the so-called FAIR data principles (findable, accessible, interoperable, reusable) are taken into account and should allow an expedited communication of results. The most essential work of the task force includes the generation of a study portal with metadata, selected instruments, other study documents, and study results as well as a search engine for preprint publications. Additional contents include a concept for the linkage between research and routine data, a service for an enhanced practice of image data, and the application of a standardized analysis routine for harmonized quality assessment. This infrastructure, currently being established, will facilitate the findability and handling of German COVID-19 research. The developments initiated in the context of the NFDI4Health COVID-19 task force are reusable for further research topics, as the challenges addressed are generic for the findability of and the handling with research data.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Disseminação de Informação / Pesquisa Biomédica / COVID-19 Limite: Humans País como assunto: Europa Idioma: De Ano de publicação: 2021 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Disseminação de Informação / Pesquisa Biomédica / COVID-19 Limite: Humans País como assunto: Europa Idioma: De Ano de publicação: 2021 Tipo de documento: Article