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Learning from disease registries during a pandemic: Moving toward an international federation of patient registries.
Wall, Dmitri; Alhusayen, Raed; Arents, Bernd; Apfelbacher, Christian; Balogh, Esther A; Bokhari, Laita; Bloem, Manja; Bosma, Angela L; Burton, Tim; Castelo-Soccio, Leslie; Fagan, Nicole; Feldman, Steven R; Fletcher, Godfrey; Flohr, Carsten; Freeman, Esther; French, Lars E; Griffiths, Christopher E M; Hruza, George J; Ingram, John R; Kappelman, Michael D; Lara-Corrales, Irene; Lim, Henry W; Meah, Nekma; McMahon, Devon E; Mahil, Satveer K; McNicoll, Ian; Musters, Annelie; Naik, Haley B; Sinclair, Rodney; Smith, Catherine H; Spuls, Phyllis; Tobin, Desmond J; York, Katherine; Irvine, Alan D.
Afiliação
  • Wall D; Hair Restoration Blackrock, Dublin, Ireland; National and International Skin Registry Solutions (NISR), Charles Institute of Dermatology, University College Dublin, Dublin, Ireland; School of Medicine, University College Dublin, Dublin, Ireland. Electronic address: dmitri.wall@gmail.com.
  • Alhusayen R; Division of Dermatology and Sunnybrook Research Institute, University of Toronto, Ontario, Canada.
  • Arents B; Dutch Association for People with Atopic Dermatitis, Nijkerk, the Netherlands.
  • Apfelbacher C; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto von Guericke University Magdeburg, Magdeburg, Germany; Family Medicine and Primary Care, Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore.
  • Balogh EA; Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston Salem, North Carolina, USA.
  • Bokhari L; Sinclair Dermatology, Melbourne, Australia.
  • Bloem M; Department of Dermatology, Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, Amsterdam, The Netherlands.
  • Bosma AL; Department of Dermatology, Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, Amsterdam, The Netherlands.
  • Burton T; Independent patient representative.
  • Castelo-Soccio L; Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA; University of Pennsylvania School of Medicine, Philadelphia, Pennsylvania, USA.
  • Fagan N; University of Dublin, Trinity College, Dublin, Ireland.
  • Feldman SR; Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston Salem, North Carolina, USA.
  • Fletcher G; National and International Skin Registry Solutions (NISR), Charles Institute of Dermatology, University College Dublin, Dublin, Ireland.
  • Flohr C; Unit for Population-Based Dermatology Research, St John's Institute of Dermatology, Guy's and St Thomas' NHS Foundation Trust and King's College London, London, UK.
  • Freeman E; Massachusetts General Hospital Department of Dermatology, Harvard Medical School, Boston, Massachusetts, USA.
  • French LE; Department of Dermatology, University Hospital, Munich University of Ludwig Maximilian, Munich, Germany.
  • Griffiths CEM; Dermatology Centre, The University of Manchester and NIHR Manchester Biomedical Research Centre, Manchester, UK.
  • Hruza GJ; St. Louis University Department of Dermatology, St. Louis, Missouri, USA.
  • Ingram JR; Department of Dermatology, Division of Infection & Immunity, Cardiff University, Cardiff, UK.
  • Kappelman MD; Department of Pediatrics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
  • Lara-Corrales I; Section of Dermatology, Hospital for Sick Children, Toronto, Ontario, Canada.
  • Lim HW; Department of Dermatology, Henry Ford Health System, Detroit, Michigan, USA.
  • Meah N; Sinclair Dermatology, Melbourne, Australia.
  • McMahon DE; Massachusetts General Hospital Department of Dermatology, Harvard Medical School, Boston, Massachusetts, USA.
  • Mahil SK; St John's Institute of Dermatology, Guy's and St Thomas' NHS Foundation Trust and King's College London, London, UK.
  • McNicoll I; Centre for Health Informatics and Multiprofessional Education (CHIME), University College London, London, UK.
  • Musters A; Department of Dermatology, Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, Amsterdam, The Netherlands.
  • Naik HB; Department of Dermatology, University of California, San Francisco, San Francisco, California, USA.
  • Sinclair R; Sinclair Dermatology, Melbourne, Australia.
  • Smith CH; St John's Institute of Dermatology, Guy's and St Thomas' NHS Foundation Trust and King's College London, London, UK.
  • Spuls P; Department of Dermatology, Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, Amsterdam, The Netherlands.
  • Tobin DJ; The Charles Institute of Dermatology, School of Medicine, University College Dublin, Belfield, Dublin, Ireland.
  • York K; Netcare Greenacres Hospital, Port Elizabeth, South Africa.
  • Irvine AD; National and International Skin Registry Solutions (NISR), Charles Institute of Dermatology, University College Dublin, Dublin, Ireland; Clinical Medicine, Trinity College, Dublin, Ireland.
Clin Dermatol ; 39(3): 467-478, 2021.
Article em En | MEDLINE | ID: mdl-34518006
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pandemias / COVID-19 Limite: Humans Idioma: En Ano de publicação: 2021 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pandemias / COVID-19 Limite: Humans Idioma: En Ano de publicação: 2021 Tipo de documento: Article