Leveraging a qualitative data repository to integrate patient and caregiver perspectives into clinical research.
J Clin Transl Sci
; 5(1): e155, 2021.
Article
em En
| MEDLINE
| ID: mdl-34527294
ABSTRACT
Understanding patient and caregiver experiences is a critical component of the conception, design, and implementation of clinical research studies. The "Database of Individual Patient Experiences" (DIPEx) is an innovative, evidence-based approach for eliciting rich information about health experiences. We conducted a formative evaluation with 14 pediatric oncology researchers to assess the value of using data from a DIPEx study on patient and caregiver experiences with childhood cancer to inform patient-centered research in pediatric oncology. Participants identified barriers to incorporating patient perspectives and experiences into their research and how the DIPEx approach could be leveraged to facilitate this practice.
Texto completo:
1
Base de dados:
MEDLINE
Tipo de estudo:
Qualitative_research
Idioma:
En
Ano de publicação:
2021
Tipo de documento:
Article