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Health-related quality of life in Norwegian adults with Fabry disease: Disease severity, pain, fatigue and psychological distress.
Pihlstrøm, Hege Kampen; Weedon-Fekjær, Mina Susanne; Bjerkely, Birgitte Leisner; von der Lippe, Charlotte; Ørstavik, Kristin; Mathisen, Per; Heimdal, Ketil; Jenssen, Trond Geir; Dahle, Dag Olav; Solberg, Olga Karin; Sigurdardottir, Solrun.
Afiliação
  • Pihlstrøm HK; Department of Surgery, Inflammation Medicine and Transplantation, Section of Nephrology Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Weedon-Fekjær MS; Centre for Rare Disorders, Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Bjerkely BL; Centre for Rare Disorders, Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • von der Lippe C; Centre for Rare Disorders, Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Ørstavik K; Department of Neurology, Section for Rare Neuromuscular disorders Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Mathisen P; Department of Cardiology Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Heimdal K; Department of Medical Genetics Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Jenssen TG; Department of Surgery, Inflammation Medicine and Transplantation, Section of Nephrology Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Dahle DO; Institute of Clinical Medicine, Faculty of Medicine, University of Oslo Oslo Norway.
  • Solberg OK; Department of Surgery, Inflammation Medicine and Transplantation, Section of Nephrology Oslo University Hospital, Rikshospitalet HF Oslo Norway.
  • Sigurdardottir S; Centre for Rare Disorders, Oslo University Hospital, Rikshospitalet HF Oslo Norway.
JIMD Rep ; 62(1): 56-69, 2021 Nov.
Article em En | MEDLINE | ID: mdl-34765399
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Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2021 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2021 Tipo de documento: Article