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Psychosocial Functioning in Siblings of Children With Rare Disorders Compared to Controls.
Haukeland, Yngvild B; Vatne, Torun M; Mossige, Svein; Fjermestad, Krister W.
Afiliação
  • Haukeland YB; Department of Psychology, University of Oslo, Oslo, Norway.
  • Vatne TM; Department of Psychology, University of Oslo, Oslo, Norway.
  • Mossige S; Frambu Resource Centre for Rare Disorders, Siggerud, Norway.
  • Fjermestad KW; Frambu Resource Centre for Rare Disorders, Siggerud, Norway.
Yale J Biol Med ; 94(4): 537-544, 2021 12.
Article em En | MEDLINE | ID: mdl-34970091
Siblings of children with chronic disorders are at increased risk of psychosocial problems. The risk may be exacerbated when the chronic disorder is rare and limited medical knowledge is available, due to more uncertainty and feelings of isolation. We examined mental health, parent-child communication, child-parent relationship quality, and social support among 100 children aged 8 to 16 years (M age 11.5 years, SD = 2.2; 50.0% boys, 50.0% girls). Fifty-six were siblings of children with rare disorders, and 44 were controls. The siblings of children with rare disorders (herein, siblings) were recruited from a resource centre for rare disorders and comprised siblings of children with a range of rare disorders including neuromuscular disorders and rare chromosomal disorders with intellectual disability. Controls were recruited from schools. Self-reported child mental health was significantly poorer for siblings compared to controls (effect size difference d = 0.75). Parent-reported child mental health was not significantly different between the groups (d = -0.06 to 0.16). Most child-parent relationships (anxiety/avoidance; mothers/fathers) were significantly poorer for siblings compared to controls (d = 0.47 to 0.91). There was no difference between groups in anxious relation with mother. Parent-child communication was significantly poorer for siblings compared to controls (d = -0.87 to -0.75). Social support was significantly poorer for siblings compared to controls (d = 0.61). We conclude that siblings of children with rare disorders display more psychosocial problems than controls. Interventions are indicated to prevent further maladjustment for siblings.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Irmãos / Transtornos Mentais Tipo de estudo: Diagnostic_studies Limite: Child / Female / Humans / Male Idioma: En Ano de publicação: 2021 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Irmãos / Transtornos Mentais Tipo de estudo: Diagnostic_studies Limite: Child / Female / Humans / Male Idioma: En Ano de publicação: 2021 Tipo de documento: Article