Palliative Care Services within a Pediatric Hematology-Oncology Program in a Low-Resource Setting.
J Pain Symptom Manage
; 63(5): e473-e480, 2022 05.
Article
em En
| MEDLINE
| ID: mdl-35031502
ABSTRACT
CONTEXT Outcomes for children with cancer in sub-Saharan Africa (SAA) are dismal due to delayed diagnosis and limited access to curative therapy. When establishing a pediatric hematology-oncology (PHO) program in low-resource settings, early integration of palliative care services becomes essential. While palliative care is a human right, equitable distribution is lacking. OBJECTIVES:
We aim to describe our experience establishing a palliative care program, the services offered, and the distribution of patients served.METHODS:
This is a brief description of our PHO palliative care program in Lilongwe, Malawi at a tertiary care center and a three-year retrospective review of activities (2017-2020). Services offered include inpatient, outpatient, home visits, end of life care, and strengthening of referral systems.RESULTS:
Over the three-year period, 315 patients were enrolled. 57% (n=179) were male. The median age was seven years (5 months-22 years). Patients served were from 17 of 28 districts within Malawi. Diagnoses of patients included 43% solid tumors (n=135), 22% lymphoma (n=68), 15% leukemia (n=47), and 21% hematologic disease (n=65). 40% of patients have died (n=125), with 53% of deaths occurring at home (n=66), 22% in the hospital (n=28), and 25% at unknown locations (n=31).CONCLUSION:
Palliative care is a critical component of PHO programs worldwide. Programs must leverage existing networks to ensure optimal care to children and families. We demonstrate the feasibility of integrating palliative care services within a PHO program in a low-resource setting, which could serve as a model for other countries in SSA.Palavras-chave
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Base de dados:
MEDLINE
Assunto principal:
Assistência Terminal
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Enfermagem de Cuidados Paliativos na Terminalidade da Vida
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Hematologia
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Neoplasias
Limite:
Child
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Female
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Humans
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Male
Idioma:
En
Ano de publicação:
2022
Tipo de documento:
Article