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Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience.
Krantz, Mattias; Malm, Emma; Darin, Niklas; Sofou, Kalliopi; Savvidou, Antri; Reilly, Colin; Boström, Petra.
Afiliação
  • Krantz M; Department of Psychology, University of Gothenburg, Gothenburg, Sweden.
  • Malm E; Department of Psychology, University of Gothenburg, Gothenburg, Sweden.
  • Darin N; Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden.
  • Sofou K; Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
  • Savvidou A; Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden.
  • Reilly C; Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
  • Boström P; Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden.
Child Care Health Dev ; 48(5): 842-851, 2022 09.
Article em En | MEDLINE | ID: mdl-35233790

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Resiliência Psicológica / Lipofuscinoses Ceroides Neuronais Tipo de estudo: Qualitative_research Limite: Adult / Child / Female / Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Resiliência Psicológica / Lipofuscinoses Ceroides Neuronais Tipo de estudo: Qualitative_research Limite: Adult / Child / Female / Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article