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Assessing the Relationship of Patient Reported Outcome Measures With Functional Status in Dysferlinopathy: A Rasch Analysis Approach.
Mayhew, Anna G; James, Meredith K; Moore, Ursula; Sutherland, Helen; Jacobs, Marni; Feng, Jia; Lowes, Linda Pax; Alfano, Lindsay N; Muni Lofra, Robert; Rufibach, Laura E; Rose, Kristy; Duong, Tina; Bello, Luca; Pedrosa-Hernández, Irene; Holsten, Scott; Sakamoto, Chikako; Canal, Aurélie; Sánchez-Aguilera Práxedes, Nieves; Thiele, Simone; Siener, Catherine; Vandevelde, Bruno; DeWolf, Brittney; Maron, Elke; Gordish-Dressman, Heather; Hilsden, Heather; Guglieri, Michela; Hogrel, Jean-Yves; Blamire, Andrew M; Carlier, Pierre G; Spuler, Simone; Day, John W; Jones, Kristi J; Bharucha-Goebel, Diana X; Salort-Campana, Emmanuelle; Pestronk, Alan; Walter, Maggie C; Paradas, Carmen; Stojkovic, Tanya; Mori-Yoshimura, Madoka; Bravver, Elena; Díaz-Manera, Jordi; Pegoraro, Elena; Mendell, Jerry R; Straub, Volker.
Afiliação
  • Mayhew AG; The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
  • James MK; The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
  • Moore U; The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
  • Sutherland H; The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
  • Jacobs M; Center for Translational Science, Division of Biostatistics and Study Methodology, Children's National Health System, Washington, DC, United States.
  • Feng J; Pediatrics, Epidemiology and Biostatistics, George Washington University, Washington, DC, United States.
  • Lowes LP; Center for Translational Science, Division of Biostatistics and Study Methodology, Children's National Health System, Washington, DC, United States.
  • Alfano LN; The Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, OH, United States.
  • Muni Lofra R; The Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, OH, United States.
  • Rufibach LE; The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
  • Rose K; The Jain Foundation, Seattle, WA, United States.
  • Duong T; The Children's Hospital at Westmead, The University of Sydney, Sydney, NSW, Australia.
  • Bello L; Cooperative International Neuromuscular Research Group (CINRG), Children's National Health System, Washington, DC, United States.
  • Pedrosa-Hernández I; Lucile Salter Packard Children's Hospital at Stanford, Neurology, Palo Alto, CA, United States.
  • Holsten S; Department of Neuroscience, University of Padova, Padua, Italy.
  • Sakamoto C; Physical Medicine and Rehabilitation, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
  • Canal A; Neuroscience Institute, Carolinas Neuromuscular/ALS-MDA Center, Carolinas HealthCare System, Charlotte, NC, United States.
  • Sánchez-Aguilera Práxedes N; Department of Physical Rehabilitation, National Center Hospital, National Center of Neurology and Psychiatry Tokyo, Tokyo, Japan.
  • Thiele S; Institut de Myologie, AP-HP, GH Pitié-Salpêtrière, Paris, France.
  • Siener C; Neurorehabilitation Unit, Rehabilitation Hospital Universitario Virgen del Rocío Sevilla, Seville, Spain.
  • Vandevelde B; Department of Neurology, Friedrich-Baur-Institute, Ludwig-Maximilians-University of Munich, Munich, Germany.
  • DeWolf B; Department of Neurology, Washington University School of Medicine, St. Louis, MO, United States.
  • Maron E; Service des Maladies Neuromusculaire et de la SLA, Hôpital de La Timone, Marseille, France.
  • Gordish-Dressman H; Cooperative International Neuromuscular Research Group (CINRG), Children's National Health System, Washington, DC, United States.
  • Hilsden H; ELAN-PHYSIO, Praxis für Physiotherapie Maron, Berlin, Germany.
  • Guglieri M; Center for Translational Science, Division of Biostatistics and Study Methodology, Children's National Health System, Washington, DC, United States.
  • Hogrel JY; Pediatrics, Epidemiology and Biostatistics, George Washington University, Washington, DC, United States.
  • Blamire AM; The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
  • Carlier PG; The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
  • Spuler S; Institut de Myologie, AP-HP, GH Pitié-Salpêtrière, Paris, France.
  • Day JW; Magnetic Resonance Centre, Institute for Cellular Medicine, Newcastle University, Newcastle upon Tyne, United Kingdom.
  • Jones KJ; AIM & CEA NMR Laboratory, Institute of Myology, Pitié-Salpêtrière University Hospital, Paris, France.
  • Bharucha-Goebel DX; Charite Muscle Research Unit, Experimental and Clinical Research Center, A Joint Cooperation of the Charité Medical Faculty and the Max Delbrück Center for Molecular Medicine, Berlin, Germany.
  • Salort-Campana E; Department of Neurology and Neurological Sciences, Stanford University School of Medicine, Stanford, CA, United States.
  • Pestronk A; The Children's Hospital at Westmead, The University of Sydney, Sydney, NSW, Australia.
  • Walter MC; Department of Neurology Children's National Health System, Washington, DC, United States.
  • Paradas C; National Institutes of Health (NINDS), Bethesda, MD, United States.
  • Stojkovic T; Service des Maladies Neuromusculaire et de la SLA, Hôpital de La Timone, Marseille, France.
  • Mori-Yoshimura M; Department of Neurology, Washington University School of Medicine, St. Louis, MO, United States.
  • Bravver E; Department of Neurology, Friedrich-Baur-Institute, Ludwig-Maximilians-University of Munich, Munich, Germany.
  • Díaz-Manera J; Neuromuscular Unit, Department of Neurology, Hospital U. Virgen del Rocío/Instituto de Biomedicina de Sevilla, Sevilla, Spain.
  • Pegoraro E; Institut de Myologie, AP-HP, GH Pitié-Salpêtrière, Paris, France.
  • Mendell JR; Department of Neurology, National Center Hospital, National Center of Neurology and Psychiatry Tokyo, Tokyo, Japan.
  • Straub V; Neuroscience Institute, Carolinas Neuromuscular/ALS-MDA Center, Carolinas HealthCare System, Charlotte, NC, United States.
Front Neurol ; 13: 828525, 2022.
Article em En | MEDLINE | ID: mdl-35359643
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Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2022 Tipo de documento: Article
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Prognostic_studies Idioma: En Ano de publicação: 2022 Tipo de documento: Article