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Partnering with Youth and Parents for the Greatest Impact of Top Patient-Oriented Priorities in Pediatric Chronic Pain Research, Care and Policy.
Birnie, Kathryn A; Ouellette, Carley; Marianayagam, Justina; Campbell, Fiona; Lamontagne, Christine; Forgeron, Paula; Stinson, Jennifer.
Afiliação
  • Birnie KA; An assistant professor in the Department of Anesthesiology, Perioperative and Pain Medicine at the University of Calgary; the Alberta Children's Hospital Research Institute; and the Hotchkiss Brain Institute. She is also the associate scientific director of SKIP. Kathryn is a clinical psychologist a
  • Ouellette C; A registered nurse at Hamilton Health Sciences and a PhD student at School of Nursing, McMaster University. Carley is a person with lived experience and an active patient partner engaged in multiple projects. She works clinically as an emergency department nurse and is in her first year of doctoral
  • Marianayagam J; currently completing her MD at the Northern Ontario School of Medicine in Thunder Bay, ON. Justina is a person with lived experience.
  • Campbell F; A professor at the University of Toronto and the medical director of the Chronic Pain Clinic at The Hospital for Sick Children in Toronto, ON.
  • Lamontagne C; The director of Chronic Pain Services at Children's Hospital of Eastern Ontario in Ottawa, ON.
  • Forgeron P; A professor at the University of Ottawa in Ottawa, ON. Before joining the university, Paula had a diverse clinical career with direct care experience in pediatric and adult emergency care and neonatal intensive care, as well as a position as the clinical nurse specialist on a pediatric complex pain
  • Stinson J; A senior scientist at The Hospital for Sick Children and a professor at the University of Toronto in Toronto, ON. Jennifer is a nurse practitioner and nurse clinician scientist.
Healthc Q ; 24(SP): 18-23, 2022 Apr.
Article em En | MEDLINE | ID: mdl-35467506
ABSTRACT
Our original patient-oriented research project identified the top 10 priorities for pediatric chronic pain research and care in Canada from the perspective of people with lived experience (patients), their family members and healthcare professionals through a modified James Lind Alliance Priority Setting Partnership. We undertook subsequent knowledge translation activities with youth, families, healthcare professionals, decision makers and researchers to (1) generate awareness and interest in the top 10 priorities and our partnership process, (2) facilitate collaborative dialogue and open innovation and (3) integrate and adopt the top 10 priorities into stakeholder activities. This paper describes our knowledge translation activities, outcomes and impact.
Assuntos

Texto completo: 1 Eixos temáticos: Pesquisa_clinica Base de dados: MEDLINE Assunto principal: Pesquisa Biomédica / Dor Crônica Limite: Adolescent / Child / Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article

Texto completo: 1 Eixos temáticos: Pesquisa_clinica Base de dados: MEDLINE Assunto principal: Pesquisa Biomédica / Dor Crônica Limite: Adolescent / Child / Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article