"Why them, why me, why us?" The experiences of parents of children with lysosomal acid lipase deficiency: an interpretative phenomenological analysis study.

Hassall, S; Smith, D M; Rust, S; Jones, S A; Wittkowski, A

Hassall, S; Smith, D M; Rust, S; Jones, S A; Wittkowski, A.

Afiliação

Hassall S; Faculty of Biology, Medicine and Health, Division of Psychology and Mental Health, School of Health Sciences, Manchester Academic Health Science Centre, The University of Manchester, 2nd Floor Zochonis Building, Brunswick Street, Manchester, M13 9NY, UK.
Smith DM; Greater Manchester Mental Health NHS Foundation Trust, Prestwich, UK.
Rust S; Faculty of Biology, Medicine and Health, Division of Psychology and Mental Health, School of Health Sciences, Manchester Academic Health Science Centre, The University of Manchester, 2nd Floor Zochonis Building, Brunswick Street, Manchester, M13 9NY, UK.
Jones SA; Manchester Academic Health Science Centre, Manchester, UK.
Wittkowski A; Royal Manchester Children's Hospital, Manchester, UK.

Orphanet J Rare Dis ; 17(1): 193, 2022 05 12.

Article em En | MEDLINE | ID: mdl-35550173

Assuntos

Doença de Wolman; Criança; Terapia de Reposição de Enzimas; Feminino; Humanos; Lactente; Mães; Pais/psicologia; Pesquisa Qualitativa; Doença de Wolman/diagnóstico; Doença de Wolman

Palavras-chave

Lived experience; Paediatrics; Parents; Qualitative; Wolman disease

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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Wolman Tipo de estudo: Diagnostic_studies / Qualitative_research Limite: Child / Female / Humans / Infant Idioma: En Ano de publicação: 2022 Tipo de documento: Article

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