Understanding Public Priorities and Perceptions of the Use of Linked Healthcare Data in South East England.
Stud Health Technol Inform
; 294: 594-598, 2022 May 25.
Article
em En
| MEDLINE
| ID: mdl-35612158
ABSTRACT
The counties of Kent, Surrey and Sussex (KSS) in South East England are creating anonymized, linked databases of healthcare records for audit, service planning and research for the first time. We consulted with 79 citizens from KSS in 5 deliberative focus groups, asking about perceived benefits and concerns regarding these new data assets. Participants hoped the linked datasets could be used for joining up care and information, improving efficiency, and improving healthcare provision, but were concerned about missing and inaccurate data, data breaches and hacking, use of data by profit-making organisations, and stigma and discrimination. Findings will be used to underpin governance and engagement strategies for integrated datasets in KSS.
Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Atenção à Saúde
/
Instalações de Saúde
Tipo de estudo:
Qualitative_research
Limite:
Humans
País como assunto:
Europa
Idioma:
En
Ano de publicação:
2022
Tipo de documento:
Article