Impact of COVID-19 pandemic on access to online therapeutic education programs for children with sickle cell disease.
J Pediatr Nurs
; 66: 179-183, 2022.
Article
em En
| MEDLINE
| ID: mdl-35816905
ABSTRACT
BACKGROUND:
Sickle cell disease (SCD) is a lifelong disease for which outcomes may be influenced by patients' self-care knowledge. Therapeutic education (TPE) is a patient-centered teaching instrument based on patient's adaptative processes and needs. TPE was developed in the Paris area by a pediatric health network using interactive face-to-face meetings. The COVID-19 pandemic has impacted the TPE modalities by promoting online training. Our aims were to evaluate the accessibility of patients with SCD to online TPE.METHODS:
We compared sessions of TPE before and after the onset of the pandemic the number of sessions, performed face-to-face or online, individual or in a group. We also recorded the number of participants in each session and their age, school level, and department in France.FINDINGS:
We observed an increase in the total number of trained children, but participation varied greatly according to the geographical area of residence, with a decrease from 22.4% to 4.9% in the proportion of attendees living in the most socio-economically deprived French departments.DISCUSSION:
Online TPE is feasible for patients with SCD but with unequal access according to socio-economic status. APPLICATION TO PRACTICE Access to TPE needs to be improved for patients living in socially disadvantaged areas.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Educação a Distância
/
COVID-19
/
Anemia Falciforme
Tipo de estudo:
Qualitative_research
Limite:
Child
/
Humans
País como assunto:
Europa
Idioma:
En
Ano de publicação:
2022
Tipo de documento:
Article